Topic: Medicare and liver transplant

Does anyone have up to date info about medicare paying for Liver transplant when the person has cholangiocarinoma? I would like to hear from  others about this. It seems that we are waiting for Medicares clearance in order for my husband to be put on the list for a liver.  Thanks in advance Brenda

Re: Medicare and liver transplant

Brenda...as far as I know, liver transplantations for intrahepatic CC are covered by Medicare in the State of Texas only.  In fact, we supported an attorney who handled the matter.  Don't know if any other States have followed suit.  Hope this helped.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Medicare and liver transplant

Hi!  Anybody have any further info on this?  Medicare in CA will cover liver transplant for CC, but Medicare in Indiana won't.  WTH???  tongue
Thanks!
Sis

Re: Medicare and liver transplant

Sis -
Medicare can be quite frustrating and quite often the system works backwards from what it should. Each state is handled differently so what Medicare will pay for in one state is not necessarily what you will get in another. Just as Medicare reimbursement rates are different from state to state.....Medicare actually punishes states that use their Medicare dollars wisely by giving them less money and states that don't manage get more. They also won't pay for a lot of preventative stuff that would save millions of dollars in the long run......an example is a quadraplegic who has an extremely high risk of pressure ulcers, they will not pay for a pressure relieving mattress until the person has bed sores. So let's close the barn door after then horse ran off.
It very frustrating and I battle it every day. One thing I will say though, is if you are denied something because it is not covered in your state then contact your Representatives and Senators, that can sometimes get those rulings changed.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.

Re: Medicare and liver transplant

Marksis......I was not aware of CA Medicare carrying liver transplantations for CC patients. I only recall a Texas attorney reaching out to the foundation 7 years ago asking for support in fighting the State of Texas and the case was won.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

6 (edited by jathy1125 Sat, 26 Jul 2014 06:40:04)

Re: Medicare and liver transplant

Crazy to read Brenda's original  post because less than a year later Kenny got his liver!!!
Apparently Medicare pays!!
Lots of prayers for all the battles our CC family faces
Cathy

Re: Medicare and liver transplant

Yes Cathy it is crazy, I thought the day would not come for Kenny to get his transplant.  It's a new life now, you know really living ! He is doing great and we have so many to thank, you, Dr Chapman, all the Drs And cordinators and GOD  for giving him this second chance. 2 young men in our area have lost their life just since we returned from the transplant, I so wish that we will see a better way to catch this disease so they can have earlier treatments.
Kenny is preparing for Fall harvest, feeling better every day. Who would have thought that?
As for Medicare , they paid their part, our insurance, BC BS paid theirs and we are just so glad.
By the way, even medicaid pays for transplants in Illinois for those that need it, it's only right that everyone be able to get medical care. In my view that is.
So yes, Kenny is doing great.
Hugs
Brenda