Topic: Dad diagnosed ICC 9 months ago
Hi. I'm Marc. My Dad-Vinnie-received ICC diagnosis in Jan. 2013. Though I never introduced him here until now, I've come to this incredible place early & often from the horrible start. Quickly, I learned I need look no further than here 4 the requisite knowledge, personal experiences, & inspiration. This site- and ones like it- are the only good things about the Internet. Plus the Family atmosphere here, Everyone pulling 4 one another. People coming together out of the uncommonly tragic towards a common goal. My Dad- 71 and strong, always athletic. After diagnosis, went to Sloan for Gem/Sys, consult w/ Kato. My gut always said sloan too conservative- that drastic circumstances require drastic measures. Not the "usual" protocol. And who's to say what's drastic w/ this anyway. W/out having exact numbers in front of me, the 1st scan showed 14x16 tumor encasing right hepatic vein, a few other very small tumors, nodes in lungs suspected metastasis. Since Kato has b$lls, we hoped- I guess naively at the time- 4 resection. 1st round chemo shrinks it to 13x15, but smaller ones bigger, and lung nodes bigger. Research tells me chemo gonna stop workin, but I'm not a doc. So on to 2nd round and it was a knock-out: huge tumor bigger than when started. On to 5-fu. During these 9 months we saw or sent discs to many places- Anderson, NYU, Bruckner, Fox-Chase, rhode island, Myron Schwartz, Hopkins. In April or so, we saw Bruckner- we were set on him. But that very day, it just changed & we stayed w/ Sloan. A few months ago, I notice someone here in a fox-chase trial- one I had found shortly after diagnosis. In the thread, she gave her number to someone else. I call her- thank you for taking my call Kris and being so nice to me and my Dad. Continued success w/ the trial. Ironically, we visited fox then and would have been accepted. But 5-fu continued to no avail. So on to fox in late August, after blood work-up, calcium to high and no fox trial. 2 days ago, last Sloan scan- "liver isn't functioning". Nothing they can do. 5- f?ck you. Give us hope. Somethin. "Will any doctor anywhere try anything?" "Never". Yesterday we go Back to Bruckner. Hope. We know there's no magic bullet, but we want a shot. We won't give up. We want my Dad to never lose heart. We need hope. Today, we got a well-needed cocktail. I shouldn't put it that way. Bruckner doesn't follow the party line and believes in cocktails - 3 or more drugs Simultaneously, but in smaller doses. And I'm Grateful. Dr. Bruckner, Dr. Hirschfeld- hope spelled name right. They believe their methods will help. And that gives us belief that our Dad will get better. Thank you for indulging me, and I hope for any and all insight. Percy, are u listening? Lol.
Oh. This THING. This THING inside my Dad. I want to pull it out, take a Baseball bat, And beat it down endlessly.