Topic: Hi All

Hi everyone. I am not really new to the site but this is my first time posting. I have been lurking and reading since my dad was diagnosed with cholangiocarcinoma in January 2012. When we first learned about his illness, we were devastated. I got depressed and cried wherever I went, except, of course, in front of my dad.

As mentioned, my dad was diagnosed last year with a 9cm tumor. There were no metastases and we were extremely lucky that the surgeon we were referred to agreed to do surgery. The tumor was resected with negative margins in May of 2012.

His last scan on May 2013 showed recurrence with mets to the lungs and liver. His onc explained that without chemo he has about 5-7 months to live. With chemo, probably a year. It was so depressing to hear these words but  I am not losing hope.

He started his first chemo (gem/cis) last week. The night after chemo, he was fatigued. He didn't vomit or felt like vomiting and seemed to be in good spirit. He was his normal self the day after chemo - walked the dogs to the park, chatted with his sisters, nephews, nieces, and grand kids who all flew from different parts of the world to show their support. His next chemo is on Monday; he rests the week after and we begin the next cycle. After which, he'll have a scan to see if chemo is working.

I just wanted to post and share as keeping this bottled inside is sometime so difficult.

Re: Hi All

Kristinj, we are so glad you are no longer a lurker because we are one heck of a family here! Also it is very cathartic to write things out know that people on the other end are glad to her from you. What kind of surgery did your Dad have? I am glad to hear he is doing ok so far with his chemo as well. Please don't listen to time frames as we have never met someone with an expiration date imprinted on the bottom of their feet. We do have Miracle on this Board and nothing says your Father can't be a new one. Attitude is everything and the other thing is to be very strong. Please keep us posted on your Father's progress as we truly care.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Hi All

Hi Kristinj,

Welcome to the board and for becoming a poster.  It is incredibly hard watching someone you love go through this and being strong for them.  I'd have been lost without this board to say and share the things that I couldn't with my family when my sister was ill. 

You will get all the support you want and need here.  There is always someone who knows the answer to a question or comes along to prop you up when you need it.

Clare

In the stars now . . . .

Re: Hi All

Kristin...glad you "got it out."  Just wondering:  have you consulted with an interventional radiologist also? 
So glad you have come out of the woods, Kristin.  Please continue to share with us.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Hi All

marions wrote:

Kristin...glad you "got it out."  Just wondering:  have you consulted with an interventional radiologist also? 
So glad you have come out of the woods, Kristin.  Please continue to share with us.
Hugs,
Marion

Thank you for the kind and uplifting words! They are very much appreciated.

We were told that radiation is not an option as it's not localized. Is that the same as interventional radiology?

Re: Hi All

Kristin....there is a difference.  The below link offers a great explanation:
http://en.wikipedia.org/wiki/Interventional_radiology

Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Hi All

Kristin - You are so wise not to lose hope.  Those timeframes the doctors give are simply averages but each individual responds differently.  My husband also had a resection with clean margins but the cancer recurred ten months later, in September 2012.  One year later he is still working, taking walks, and enjoying his life.  During the past year he has resumed playing guitar and written a novel. Chemo has been challenging at times and the doctor has had to make changes in regimen on occasion but we refuse to give up or to let the cancer take over our lives.  It sounds like your father has a very positive attitude and that will be of great help to him.  I have found this board a great source of information and support and I know you will too.  Linda

Re: Hi All

Kristin

my husband has CC in his liver, lymph nodes and lungs.

He is 44 and doing great on chemo.

After 6 1/2 mos they have sent him to an Interventional Radiologist
to discuss options like Y90 Radiation beads.  He IS a candidate
for this as well as chemoembolization.

Obviously both come with a new set of risks--but we have options
and that is good for now. smile

Re: Hi All

Bompie, you, my friend have come a long way since your first post, I love it. I can now hear the strength and advocate in your postings. Just felt you deserved a standing ovation! Now don't get upset but every time I see Bompie, I am urged to say to myself....Bomp. da Bomp.Bomp.  You already know I am nuts!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Hi All

Thank you everyone for the support. I will keep on researching. I am very positive that we will all get through this.

Any tips on diet? My mom makes juices for him to help boost his immune system - Pineapple, beets, oranges, papaya, etc. He loves these but they are filling. We have started buying organic as well.

Re: Hi All

Kirstin. Most of the nutritional drinks are good. Teddy loved Vanilla instant Breakfast by Carnation and I would blend in a banana and one shake can take the place of a meal or all the meals as it has all the needed nutrients.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.