Just saw this and thought I would add my history.
I live in northeast Ohio and am being treated at the Seidman Cancer Center in Mentor, Ohio. It is a joint venture of the Lake Hospital System (local) and the University Hospitals of Cleveland, Ohio.
Their experience is limited. I was told (finally) that they have treated four patients in the last three years. They seem to follow standard protocols but lack experience and imagination, especially as things continue to degrade. Do not confuse effort and empathy with knowledge and results.
On the good side, I saw Dr. Steven Alberts at the Mayo Clinic in Rochester, Mn for a consult on treatment. I was impressed by him but it is not practical to see him as my oncologist.
The main reason for this post was to bring it up into the "queue" so that others could contribute current information.
Fighting with dignity, not desperation.
Live, Laugh, Love - One Day at a Time