Topic: Wife diagnosed with Intrahepatic Cholangiocarcinoma stage IVb
Good morning everyone. I'm very hapy to have found this board. I was a member of a similar group when I was diagnosed with Renal Cell Carcinoma and had my kidney removed in 2005. I found that group to be extremely helpful and prayed I'd find one for my wife.
She was diagnosed on Sept 10 and it seems like our life has started falling apart since then. We've been married 30 years and she's everything in the world to me. Janet went to the Dr in late August because her legs were hurting her. The Dr' ordered a PVL to take a look at her legs and she also thought that Janet's abdomen seemed bloated and ordered an ultrasound for her ab as well. The PVL showed clots in her leg, she was sent to the ER and prescribed cumadin and Lovenox. This was the day before we were scheduled to go on vacation. Janet wanted to go anyhow so we did but by the time we returned her legs were feeling worse and were quite swollen. She was also very short of breath. She went to the Dr and was informed that she had suspected Pulmonary Embolisms and immediately sent her to the ER to be admitted to the hospital. Her Dr. also informed her that the ultrasound showed a 'spot' on her liver.
The spot on her liver was confirmed by CScan at the hospital. She was admitted and spent 11 days while they tried to figure out what was wrong for her. When they biopsied her liver and found cancer there and several other tumors in her small intestine they determined that the cancer was causing the clots.
In less than a month she's gone from just a couple clots to a major problem with new clots forming one after the other. She's had a screen implanted in her Vena Cava to prevent anymore PE's but her legs are extremely swollen and painful. She's started Chemo and they put her on Gem/Cisplatin on a 21 day cycle. She's had one round. The Dr. told her that if we treated the cancer it would probably help slow down the clots. So far she's getting 2 Lovenox shota a day and there's no let up in her legs.
Is this common with CC? Are blood clots a typical issue and if so can anyone give me some idea as to treatment options other than Lovenox? She's been getting 2 shots a day for 3 weeks now and her abdomen is one solid furious looking purple bruise. It looks awful and I'm running out of places to inject her.
I'm also wondering what we can expect from this awful disease. My wife has always been healthy. She exercises, eats right, works hard and has always taken great care of herself and she's ALWAYS cared so much for me! She's my angel and I want to do whatever I can to help her through this.
Her Dr. told her that because her cancer is inoperable her prognosis would probably be less than 6 months without chemo but 9 to 11 months with treatment. I know that these are averages and statistics are difficult to apply to individuals but what can she realistically expect? She doesn't feel sick at all...her only problem is in her legs.
Any insight would be greatly appreciated. I feel like I'm in a bad, bad dream and just can't wake up...
Sorry to have rambled on so long.