Topic: update on me
Hi, all. I have not written in awhile. But here goes! Post-chemo palliative left lobe liver resection 1/31/13 followed by y-90 radiation to the remaining right lobe (it had tumors too but small ones) 2/20/13 ... the plan had been to return to chemo but have not yet. Tried twice, once in March and once in April, but counts always plummeted so no more chemo. Platelets seem perfectly happy to sit at about 60 or 70.
I have done no treatment since, and felt great all summer - - and what a blessing that has been! The scans in mid-July (PET/ct and MRI) showed no visible signs of disease. Unfortunately my tumor markers never got down to zero and have been going up all summer, but then ... mid-September scans continue to show no visible disease. So we are now scanning every 8 weeks, just waiting and seeing what shows up.
I am going to have a bland embolization of my spleen to see if we can kick out some platelets (they hide there) so I can get into a trial when I have a tumor to watch. I'm looking at my oncologist's MEK inhibitor trial but you need 1. platelets and 2. tumors to watch. We know this cancer always comes back, I'm just hoping mine takes its sweet time. I love not being on chemo. One other option I have is to "treat the tumor markers" and take xeloda (which is apparently not hard on counts) and see if the markers come down. One doc says xeloda alone is not very useful against cholangio but another doc says it is. What do you all think of that? Oh, I did develop an ulcer, but there are good drugs for that. So all's well for today.
Thinking always of you brave friends of mine on these boards. xox Holly