Topic: Any success using Sunitinib?

Has anyone had good results using Sinitinib, or entered the clinical trial from the NIH?  My sister-in-law is on her third chemo and we're looking for other possible treatments (she's on Cisplatin, started on Gemzar, etc).
Trial: http://clinicaltrials.gov/ct2/show/NCT0 … amp;rank=1

Re: Any success using Sunitinib?

Hi Donndenman,

Welcome to the site. Sorry that you had to find us all and I'm sorry to hear what your sister in law is going through right now. But, I am glad that you've joined us all here as you've come to the right place for support and help, and you'll get a ton of each from everyone here.

How did your sister in law tolerate her chemo's and how have the results of them been for her? Here are some link for you that should be of interest.

http://www.cholangiocarcinoma.org/punbb … 1444287097

http://www.macmillan.org.uk/Cancerinfor … tinib.aspx

http://www.cancerresearchuk.org/cancer- … /sunitinib

http://www.cholangiocarcinoma.org/punbb … 1467387901

I hope that you will keep coming back here and keep us updated on how everything goes for your SIL. If we can help in any way then please just ask and we'll do what we can. We are all here for you. We know what you're going through right now and we care. Looking forward to hearing more from you.

My best wishes to you and your SIL,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Any success using Sunitinib?

Hello Donndenman and welcome to our remarkable family. You have come to the best place to be but sorry you had to find us. Can you tell us a little more about your Sister-in-Law? Where is she being treated? Since she has been through different Chemos I am wondering if she has had other opinions, we are huge believers in that, and where is her CC? I can't help you in the Chemo area as my husband never had Chemo but I know that you will be getting some answers here. The more we know about your SIL the better we can help. Hang in and Be Strong and please keep us updated on her progress.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Any success using Sunitinib?

Gavin and Lainy, Thanks for the warm welcome!

She has tolerated the chemo really well, and now on her third therapy.  With the first chemo her hair didn't even fall out, and due to the effects on the tumor she actually felt better than before.  It seems that each new therapy is somewhat harder to tolerate (probably that's why they are recommended in that order), and there are tough parts of the cycle for her.

Re: Any success using Sunitinib?

donndenman, I hope your Sister's ONC knows of the side effects she is having as there are things she can take and he should know anyway. Also wondering if she ever got a 2nd opinion, that is so important. And may I ask where her CC is and about the diagnosis. Wishing her the best and thanks for the update.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Any success using Sunitinib?

donndenman.....welcome.  Given your location of residence, I assume that your sister in-law has consulted with either, Stanford or UCSF?
The study mentioned by you has been approved by ECOG (Eastern Cooperative Oncology Group) however; I don't see any mention of it being conducted in the US.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER