Topic: New to Site

Hello I was diagnosed in late January 2013, and have been fighting since that time. The cancer is in my liver we found it while searching for possible kidney stones because of pain in that area of my back. The CT scan showed tumors in the liver and the MRI found possible spots in each lung, on my neck, and on my spine at the kidney level. I'm 54 years old with my wife Jennie two wonderful kids college age.

I pastor a church in northeastern Colorado and have a wonderful congregation that loves me and is helping me and so far I've been able to continue working and have only missed preaching one Sunday because I had a fever and the Doctor wanted to administer IV antibiotics.

My job as I see it now is maintaining a good attitude as I must lead my family and my congregation through this thing.

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Welcome WordmanWray.
Sorry you had to find us. This is a wonderful place for support and information. I think it's great that you are able to continue to work: I imagine the shoe is often on the other foot, with people wanting to help you! Keep up your positive attitude, as it works wonders.
I returned to church just months before my diagnosis, and have since been rebaptized. It has been a source of comfort to me.
What treatment have you had? Please keep us posted and if you need anything, don't hesitate to ask! Many of our "family" have a wealth of information.

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

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Hello Wordman and welcome to our family but sorry you had to join us. Sounds like your Congregation will have you listening to them now instead of them listening to you! It all helps and a good attitude is so important. Do you have pain and if so is it under control and where are you being treated. We are big fans of 2nd and 3rd opinions, very important with this CC. Can you tell us a little more about your Diagnosis and treatment?  Sending you Prayers and best wishes and Be Strong! Looking forward to hearing more about your Journey.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

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Welcome to this wonderful group of supportive and loving people. I am sorry you are going through this but your faith will carry you. I was diagnosed in 2010 with ICC. If you would like to talk to someone please call me. 330-903-6868.
Peace and hugs
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

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Hi WordmanWray,

Welcome to the site. Sorry that you had to find us all here and I'm sorry too to hear about what's going on with you right now. But, I am very glad that you've joined us all here as you're in the best place for support and help and you will get a load of each from everyone here. Yes maintaining a good attitude will help you in so many ways and it sounds to me like you are doing just this.

Have you started any treatment right now and if so what? Many of the members here have had various types of treatments and will be able to share their experiences with you throughout. Did your doctors talk to you about surgery of any type?

I am glad to hear that you have been able to keep working and I am sure that that will mean so much to you to be able to continue to do that. And please keep coming back here and let us know how everything goes for you. We are here for you and we care.

My best wishes to you,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

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I love your name!  Wordman! A man of God's Word!!!  I am sorry you are battling this disease.  I am on the same road.  My hope is in our Great Physician.  He knows more about this awful cancer than any of the doctors & will lead you to the right treatments & the right doctors.  I pray you will be comforted by all those who I am sure you have comforted at your church.

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Wordman....I too would like to follow the others in welcoming you to our site. Being that you have been diagnosed earlier this year I assume that you are undergoing some type of treatment regimen.  Are you experiencing relief from the back pain?
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: New to Site

Many of you asked about my treatment so far. Here's basically how my year has gone.

-Diagnosed with stage 4  in late January no known point of origin. The MRI showed spots on my spine, both lungs, to go along with my original CT scan that showed large spots in my liver. Since my doc couldn't find a point of origin he put down pancreatic cancer and sent me for a second opinion at University of Colorado, Denver. Their diagnosis was rare bile duct cancer, inoperable and incurable. My mom's a retired RN and said the liver can take a lot of abuse but the tumors are spread so it's not about being able to cut off and isolate the tumors. At that time they said I had a 48% chance of being alive in a year. The doctors and U of CO Denver said the most they could do is make me as comfortable as possible for the time I had left. Since I came in for pain in my back and the CT scan was actually looking for gall stones or kidney stones. My treatment began with:
-10 days of radiation on the tumor on my spine about kidney high causing me so much pain.
- along with this there was one out of the two chemo drugs gemsar/cisplatin that could be taken along with the radiation so we did that.
-Since then I've had radiation on my neck, 10 days, on my lower spine at the same time, and halfway through they found a tumor on my right hip I just finished that radiation last week. We tried the chemo for three rounds of
-first week two drugs
-second week one drug
-third week no drug
But my blood counts especially white cells became critically low so we finally stopped. Both Denver and Greeley doc's agreed the normal chemo for CC wasn't working even though the tumor's in my liver remained about the same size We thought that was a win even if the doc's didn't. I still think we should give that chemo a second chance with out the interruption of so much radiation. We went back to Denver to check into experimental treatments and we must wait until my blood gets back up to more normal numbers before we can try anything.
This is long so I'll stop for now since we're all waiting.

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Dear Wordman Wray, I am so very sorry that you have had to suffer so much before you hardly began. We are big fans of 2nd and 3rd opinions which have surprisingly helped some of our family even when diagnosed at Stage IV. Please don't listen to time frames as you know we were not born with expiration dates on the bottom of our feet.  I am posting a copy of another type of prayer that many of our family likes.

                                         I asked for prosperity.
                         God gave me brawn and brain to work.
                                         I asked for courage.
                           God gave me dangers to overcome.
                                         I asked for patience.
            God placed me in situations where I was forced to wait.
                                         I asked for love.
                     God gave me troubled people to help.
                                         I asked for favors.
                               God gave me opportunities.
                               I received nothing I wanted.
                             I received everything I needed. By Aaron Hoopes

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

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Wordman...I wish for the radiation treatments to be effective on the bone metastases, as it has been for so many others on this site. 
Wishing for your blood count to reach the normal range and that your pain is greatly diminished due to the radiation.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: New to Site

Wordman,

Hoping people on this site can bring  you more hope, support and information as CC  can be a lonely and confusing journey. You sound strong and have a great community there though this one is unique in that many here have a real insight as to what you've been through and maybe provide answers to some if your questions.
God bless,
Willow

Willow

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I was able to go to MD Anderson Oct. 28-30. The doctor there had more bad news in that since my lesions have moved to the bone in my spine it makes everything much harder to treat. Since my blood counts are so low she explained to me that the spine is where we get our red, white, and platelets. This was sufficient to make me ineligible for any of their experimental trials.

We are waiting for them to send my information back to my doctor in Greeley, CO to consider one of the options out there that treats bone cancer. However, this would not treat the cc. Basically, the doctors have done all they can do and this means Jesus is my only hope which is the way it has been from the beginning. It's amazing to me that no matter how close we think we are walking in our relationship with God we can always walk closer. Here it is November, diagnosed in early Feb. and I'm still able to preach and do other things in my job. God's blessings continue to flow even on this emotional roller coaster. I'm looking forward to family gatherings at Thanksgiving and Christmas especially my own two wonderful kids one touring with a performing Arts group in Germany, and the other attending college in Illinois.

My weight continues to fall and that alone tells me there's not a lot of time left just from simple math. I've lost over a hundred pounds now and go in each week to have my abdomen drained. Thanks for helping and caring for people like me!

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Dear Wordman, sorry to hear your latest news. I hope and pray they can come up with something that would work for you. Most of all I hope you get your wish of your children coming home for the holidays and family gatherings. You have a fantastic attitude, and my Teddy who was Catholic felt his religion really got him through. I remember him telling me, "I NEVER pray for God to help me, I pray for him to help others". Wishing the best for you and please do let us know how you are getting along.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

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Dear WordmanWray,

I'm sorry to hear your very sad news.  I, too, lean on God for strength and courage with this terrible battle we face with this disease.  My prayer is that you will be able to gather with family for both Thanksgiving and Christmas and it is joyful and meaningful for all of you. 

Your faith sounds strong and I know it will get you through this most difficult time.

Love & Peace,
Mary

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I too am sorry to hear about your not so great news.  I do however admire your strength, determination, and faith.  Reading your post reminds me not to give up. Thank you.  Keep on keeping on.  Take care.
Porter

Hope, love, strength...2013 and for the years to come, Porter.

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Wordman.....I too am sorry to hear of the latest news.  Hoping and wishing with all my heart that you will be relieved of the pain caused by the bone metastases and that the Paracentesis (removal of fluid of the abdominal cavities) will continue to bring you relief as well.  Please know that a million good wishes are heading your way.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

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God Bless you Wordman!  It is amazing that God gives you His strength to still be able to continue being a pastor!  I don't know if you knew of Pastor Chuck Smith but he had the same strength & gave his last sermon 3 days before he went to be with the Lord!

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Faith is a strength I have learned to lean on, also. It took me 2 years, but I finally figured out that God has a plan.
I am sorry to hear about your news, and happy you are still able to work. I hope you have a wonderful holiday and that you and your family create some great memories.
My youngest brother and his family lived in Greeley, but moved to Fort Collins last year (I think). Or the other way around... The mind doesn't always remember the details anymore..... smile
Beautiful country!
God bless,

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.