Topic: On the whole, I've had better weeks
While I've participated in lots of forums over the years - photography and health/fitness come to mind, this is one I never thought I'd be participating in. Frankly, before this past week, I'd never heard of cholangiocarcinoma.
So, I just turned 56 last month. I would have said I was in the best shape of my life. I just got back from Nashville, TN to do a 100k charity bike ride. I was feeling pretty great. I went to a wedding the following Friday and saw my beloved college roommate, who mentioned my eyes looked yellow. I came back, called my internist last Monday, said I thought I should get in that day and I did. Since then, life has been a blur of alphabet numbers of tests and meeting new doctors.
I've had a blood work, a CT scan with contrast, an MRI/MRCP, a colonoscopy (had a routine screening one in February), an edoscopy, an endoscopic ultrasound, a meeting with a medical oncologist and two more tests scheduled tomorrow and a meeting with a surgical oncologist.
It's cholangiocarcinoma, but we're still trying to figure out staging, size, resectability, treatment options, etc., etc., etc.
I don't mind saying I am scared. I'm used to being very active, I have small grandchildren I want to see grow up. I am lucky that other than, pardon my language, F&#(@&@^(-in cancer I feel fine. I don't have pain, but I'm very anxious.
I'm trying to learn what I can. I want to make the most informed decisions I can. I want to read the stories of hope. I want to have a life ... a good life ... I'm sure every single one here can say the same.
I am very fortunate to live, literally, down the street from a very good hospital, but if there is a better place, I want to know that.
I'm trying to figure out how to break this to my elderly parents and my son. My parents lost my little brother (their youngest son) two years ago, at 48, to something else completely unexpected. I am hoping to know more by end of the week to tell them.
Anyway, just wanted to say hi. I was really glad to see a support forum, because this sure feels pretty alone right now.