Re: Another new member
Well, I just got another update from my brother. Yesterday he had the CT scan and the dr called him and left a message saying that he was very pleased with the results and that they were much better than he expected and that he would call today with more information about the results. So, he was thinking, "FINALLY, some good news!" Then he got a call today. At first the dr. was sounding fairly positive, but then said that when he went to do the stent replacement that he found a cavity that he's never seen before in any of the other patients he's seen and that it prevented him from placing the stent where he wanted to. There was also a "pus like" mass that could either be an infection or another cancerous tumor. He apparently feels uncomfortable with this situation and wants my brother to go back to Mayo for more imaging and metal stent placement. So, now he has to wait to get back on their schedule and feels like he has wasted the last couple of weeks. When he was last at Mayo, his bilirubin was at 2, and he was ready to do chemo, but Mayo said that he should be able to have the chemo done and the metal stent placed locally. He's very discouraged that now he has to go back for another ERCP and all the unpleasant side effects from that and the fact that he is about 2 1/2 months out from diagnosis and they haven't been able to start any treatment yet. As Lainy said, CC is really a roller coaster ride. I just feel like the clock is ticking away while we're still trying to get chemo started so that he can start to get better!