I don't know where you are in Texas, but if you are in the Dallas area, I'm happy to talk to you (well, really, I'm happy to talk no matter where you are, but if you are Dallas we could sit down sometime). I lost a sibling 2 years ago (not to CC, but it was very sudden and unexpected). I posted some of what I did on oceangirl's thread a few minutes ago.
The other thing was to find something that meant something to me to do. For me, since my brother died of complications of diabetes, I got involved in doing the JDRF Ride to Cure. At the time I signed up for the 2012 ride, I hadn't been on a bike in years, but I signed up way in advance and I had something to do and focus on - training. And fundraising. My sister and I raised over $9000 that first year. I did the 2013 ride the week before finding out I had this. But, being involved in that community helped me tremendously.
I don't know if there are any events like that - even local walks - for cc. It's such a small number, maybe there aren't, but you know, the squeaky wheel gets the grease, so maybe it's time to make some noise and create an event. That's how Koman grew. From one tiny promise to a sister.
There is definitely something helpful about wearing a favored article of clothing. I'm still wearing my brother's watch.
I'm so sorry for your sudden loss. In my experience, the people who talk about closure or who say it's time to move on don't know what they are talking about. There's no closure here. There is, however, trite as it sounds, the passage of time that lets fewer tears leak out and more smiles at happy stuff. There are grief bombs, that come from nowhere, along the way. You just have to ride through them the best you can. Don't feel bad if you feel paralyzed one day or if other days, your brain is, at best, a big blob of oatmeal that can't be stirred.
You might read The Year of Magical Thinking by Joan Didion, who wrote it after her husband died, very unexpectedly. It's about that first year as a widow. I read it after my brother died.
My thoughts are with you,