Topic: A year ago today

It was a year ago today this whole horrible story started.  My sister went to theatre to have a gallstone removed to rectify her sudden jaundice and it became apparent when no stone was found that something was very wrong.  For her I'm glad she only survived 5 months as her disease was aggressive and her decline was just so rapid.  There just has to be a way of diagnosing earlier or making in roads as to why an otherwise healthy 41 year old gets this rare cancer.

It a lovely co-incidence that my husband is doing the Great Scottish Run for her this weekend and has raised some money for the UK CC charity.  It kind of makes a hard few days a bit easier.

Clare

In the stars now . . . .

Re: A year ago today

Clare,

I couldn't agree with you more.  We need early diagnosis of CC in order to have a better chance of survival.  It is sweet that your husband is doing the run to raise money for this terrible disease.  There is no better way to honor your sister.

Thinking of you.

Peace,
Mary

Re: A year ago today

Hi Clare. Please wish your husband well on his run and know that you are such a kind and loving family!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: A year ago today

Clare....The “first” days (day of diagnoses, Birthday, Holiday, etc.) are the most difficult to relieve.  Your husband’s fundraising event provides a great diversion from the painful memory of the moments of sorrow; kudos to him and your entire family.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: A year ago today

Clare,
It is good that you are can your grief from a traumatic anniversary of your sisters diagnosis. It absolutely is a mystery wh this particular disease strikes young people with no known risk factors. Please thank your dear husband for helping in his way to find answers.

Willow

Re: A year ago today

Hi Clare,

For me the first year was the hardest after my dad passed away and it does get easier as time goes on. That doesn't mean that we ever forget, of course we don't do that but things do get easier as time goes by. And yes, I so agree that we need things done re quicker diagnosis amongst other things and let's keep hoping that that will be done sooner rather than later.

That's great that your husband is doing the Great Scottish Run this year in your sisters memory and I hope that it goes well! And yes, it will help make these last few days a bit easier for you all. Thinking of you this weekend.

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: A year ago today

Clarem, it's wonderful that your husband is raising money by doing the run at this time.  My mother died almost three years ago after a long battle with kidney disease.  We were very close and when the first anniversary of her death approached I wanted to recognize it in a special way.  I decided that each year I will try to do something positive in her name.   She loved animals so the first year I sponsored the care of a dog for a year in a no-kill shelter.  She also cared about children so the second year I made a donation in her memory to a children's hospital.  I'm now beginning to think about what I want to do this year.  I've found that instead of dreading the anniversary of her death I now look forward to doing something positive in her memory.

Re: A year ago today

Hi Clare,

I'm sorry that you are sad because of the anniversary of your sister's diagnosis, but happy that your husband is doing something great in her memory. I hope he had a wonderful run.

Hugs,
-Pam

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.

Re: A year ago today

Thank you everyone.  I've been crying on and off all weekend - good crying just with the emotion of it all - cried when the kids set off on their race yesterday, crying now watching the start of the race on  the telly - who knows the state I'll be in when we get to the finish line shortly.

Clare

In the stars now . . . .

Re: A year ago today

Clare, what a great thing your husband has done with the race. I hope all went well. Thinking of you and your dear sister. I also pray and hope for better and early diagnosis, and will search for meaningful ways to contribute to this goal. Hugs to you...

Mike, you will live on in our hearts and memories forever...