Topic: Husband newly diagnosed
My husband is 66 and was diagnosed at the beginning of September 2013. It started with routine bloodwork back in july that seemed a little off so his primary care doctor ordered a retest and an ultrasound of his abdomen. Luckily he did that because they saw a mass in his liver. He had a ct scan and the tumor is 6cm. After two biopsies it was confirmed as intrahepatic cholangiocarcinoma. They say he is stage 1 and the oncologist at Riverside Medical Clinic suggested chemotherapy (gem/cis) and gave us a referral to dr. Imagawa at UC Irvine (http://www.faculty.uci.edu/profile.cfm?faculty_id=4828) to determine if surgery is an option. Our oncologist has worked with him before with cc patients and wanted us to see him to determine if surgery is an option.
We met with him in september and he said at this point the tumor is too large and close to a vein for surgery but wants to try chemo for two months and then scan him again to see if it has shrunk enough to do surgery. He said it would be a resection to remove approximately 60% of the liver. I'm hoping that will be the case since this cancer has such a grim outlook otherwise.
He is in the middle of his third treatment (once a week for two weeks and one week off). We meet with dr. Imagawa again in mid November and it seems like forever from now. He is tolerating chemo so far. His worst side effect is constipation but we are dealing with that as best as possible. I just hope it is killing his cancer.
Our insurance also contracts with ucla and Cedar Sinai but our RMC doctors haven't worked with anyone at those facilities that are surgical oncologists that have dealt with cc before so we are hoping uci will give us the news we want to hear in November.
Any suggestions you have would be much appreciated.