Topic: We're about out of options
I haven't posted in quite sometime. However, I have been reading many of the other posts. John and I just got off the phone with the doctor and it wasn't good news. John had a ct scan last Wednesday. He has intrahepatic cc with metastases to both lungs, a large mass on his pancreas, abdominal lymph nodes, peritineal wall, and L2 vertebrae. The doctor said the scan results show at least a 20% increase in all cancer sites and more in the liver and pancreas. The doctor said he is out of options for treatment. John has been jaundice for 3 months now. They put in a bile drain but nothing much is comming out. His liver is just not functioning. In the past he has had radiation, gemzar & oxoliplatin cocktail (he started to have reactions to oxoliplatin), erbitux(bad reaction),panitmummab was the last round of treatments. Before any of these treatments he tried a clinical trial with soranifib with disastrous results(he almost dies 3 times in two weeks in intensive care). I've been looking at other trials but his bili last week was 17.6 and rising so no trials either. The doctor relunctantly sugested a combo of gemzar & cistiplatin as a means of keeping the tumors from growing any more but he didn't sound too hopeful. Has anyone had this combo and if so what were the results? Is it just me or does a phone call instead of a face to face appointment seem like the chickens way out of dropping the bad news?
I'm sorry about rattling on but right now we both feel like we've been hit by a brick wall. Its very depressing. It helps to put things into words.