Topic: Waiting for things to get better
It's been a very long time since I posted here. I'll be honest, after the initial comfort this site gave me, I couldn't get past the posts of those that had passed away. So I kept my distance. I always seemed to gravitate towards that link, probably indulging in my own self-pity.
But here is an update.
-I'm still stage 4...YAY! (Can I ever go down?)
-I made it to my 28th birthday.
-I had an emergency hip replacement on 9/10 because one of the tumors had eaten away most of my hip and when it shrank, so did the support for my hip. It was either...replace it now...or blow it out and we can reconstruct it later. I opted for the replacement. I'm doing well. I finally ditched the walker last week in favor of one crutch. It suits me just fine and is less cumbersome than that stupid walker.
-I've been taken off of Gem/Cis and put on Oxaliplatin/5FU with horrible new side effects. Cold aversion. Neuropathy in my fingers and mouth. Tunnel vision. Increased painful Neulasta related side effect (I actually just posted a question about it - it causes me to have a fybromyalgia flare up for a few days)
-A new tumor had been found on my back. Its being radiated, and really...for the first time I can say that radiation has helped with the pain.
-My mother-in-law has finally pulled her head out of her a** and realized that I'm dying after making some really inappropriate comments at dinner a few nights ago. In her penance, she has donated her winter bonus to my husband and I for a once in a lifetime trip. We chose a 21 day cruise on the Mediterranean in December. It truly will be my one and only chance to travel with my husband since we always plan for it but can never afford it. Planning this trip has given me new purpose and a desire to stick around for a bit longer.
-Speaking of my husband, he was fired from his job because I cost too much on their health insurance. We hired a lawyer and got a relatively small settlement that includes them paying for COBRA, which is the most important thing. It was kind of a blessing in disguise because now I get to spend so much quality time with him. He's not stressed about work. He drives me to my teaching jobs. Its been really great. We also renewed our vows in August. 5 years we've been married. We wanted to celebrate with our friends and family in case...well...you know.
Ok that's enough. Sorry to take up your time.