Topic: Problematic Ascites/Drain!
My mom developed ascites in the last few weeks which resulted in two paracentesis procedures. That didn't really alleviate my mom and finally a drain was placed in her abdomen last Wednesday to help make her more comfortable.
This all sounded great until the procedure was completed, now my mom can't really do anything and the water never seems to go down enough (or maybe it accumulates way too fast). She says that she can feel the catheter sometimes and that it's painful - also, she doesn't seem to be getting enough releif even after the procedure (it might have to do with the limit set in terms of how much fluid the nurses can remove twice a week; 1.5L)
Nevertheless, has anyone had experience with a drain for ascites? Has it helped you and did it take a very long time to heal?
I am just so, so, so nervous and upset because she can't sit properly and always has to lay down. She said that she feels okay but that the drain and the fluid are ruining her ability to do anything. We will be reaching out to the doctor of course but I wanted to get first-hand experiences because those always differ from the textbook answers we receieve.
Just as an FYI - my mom did amazing on her first line of treatment gem/cis and she is now on xeloda after the cancer came back with avengence (satellite tumours, one large tumour, lymph node involvement etc)
Your feedback would be great.