Topic: University of Chicago Trial FOLFIRINOX.
Hello, So glad to have found this website! I was diagnosed on May 24, 2013 with cholangiocarcinoma, Stage IV, inoperable. Prior to diagnosis, I thought I was very healthy except for fatigue. Nine days prior to May 24, I began not to feel well and had uncontrollable itching. I went to urgent care centers three times in one week. Finally, could bear it no longer and checked into Henry Ford Hospital, West Bloomfield, MI emergency room. They took a cat scan and mri. I was told I had a 6 cm liver mass and would need to have a stent placed for drainage of the bile. Bile duct was obstructed by tumor. I have been stented 3 times since May 27, 2013. The procedures went great and has made me comfortable, although I must watch my food intake. Cholangiocarcinoma was suspected per my chart right from the beginning. PET SCAN confirmed metastasis to lymph nodes. I will skip the details, but if you want to know, please e-mail me. I have been accepted at University of Chicago for a clinical trial study. IS ANYONE familiar with the FOLFIRINOX study? If so, I would appreciate hearing from you.