Topic: My turn for nerves

I meet with my radiologist tomorrow. Not sure what I want to hear since things are going well... Do I want to go for radiation if it's offered, or wait since the trial drug is keeping me stable?? The longer I wait, the safer it will be for more radiation.
I'm not worried about what he will say, just that if given an option I don't know which direction to go. Radiation went fine previously, but given where the node is, there's always a chance there will be problems hitting the heart, pancreas, etc......

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: My turn for nerves

Oy, Kris. The only thing I can think of is, if the trial is going well and you are stable why not 1 more round and revisit it again? I always thought radiation was pretty precise on the object. Wish I had some magical advise for you. What ever decision you come up with will be the right one.
Went to the GI Friday and he believes the Remicade is working. Adding 1 more pill called Imeran which is supposed to give the Remicade a boost. He did ask me if I want the surgery and I said absolutely not. Not at my age. Next Infusion Dec. 18th. I had made a list last week of all the effects I have on a daily basis, 15 of them, and the Nurse last week went over the list with me and told me what was a side effect and what was an allergic reaction. Made me feel better mentally as I thought I was imagining so much going on, not!
So, make a list of pros and cons and see what you come up with. Are you going to your parents for Thanksgiving? Miss U cookie!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: My turn for nerves

Kris....you might want to consider the radiation options available to you and try to make an appointment with an interventional and an oncology radiologist. These specialty fields have separated some time ago. 
http://www.diagnosticimaging.com/rsna-2 … ther-again
Good luck tomorrow and know that a million good wishes are heading your way.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: My turn for nerves

Kris - I have no wonderful words of wisdom for you. I suggest listen to what the doc says then make the decision with all the facts in mind. I agree with Lainy though, make a list of the pros and cons and that will help you see the best decision for you.
Will keep you in my thoughts tomorrow.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.

Re: My turn for nerves

Kris just want you to know that whatever decision you make you are supported in prayer for healing.  Best wishes for tomorrow.

Wishing all God's blessings!

Re: My turn for nerves

Kris,
Understandable that you're nervous when (if) faced with another option for radiation. Sounds like you did well before... Hopefully the doc can assess the risks vs benefits with you. Keeping you in my thoughts for freedom from anxiety when taking the next step. It doesn't disrupt or disqualify you from the trial you're on, right?
Willow

Willow

Re: My turn for nerves

Hi, everyone. Thanks for the encouragement. He is a oncology radiologist, I think. He's the one who told me Dr. Denlinger wanted to meet me for the trial. I'm sure he has discussed my case with her, and they know what it will do re the trial.
I also am pretty sure he will have a suggestion. But I'm not sure what that will be? I know he wanted to wait before zapping me again. Has it been long enough that he will put that option on the table? I don't know. And if he does, do I take it or do I wait and see how the trial progresses? That's my dilemma (even before given it)... I've done so much waiting that I hate doing more of it, but I'm not having any health issues so why rock the boat...
I'm trying not to think about it, but I keep revisiting it. Do I or don't I?? I guess that's a decision to be made on tomorrow's appt. Not that I won't think it to death before that!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: My turn for nerves

Good luck tomorrow Kris, I hope it goes well for you and loads of positive thoughts coming your way from me. I would listen to what the radiologist says and suggests and then go and have a good think about everything that you hear. Doesn;t do any harm to just have a good long think about what is on offer and maybe you could get him/her to weigh up the pro's and cons of doing and also not doing radiation right now.

And let us know of course what is said! Good luck once again!

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: My turn for nerves

His recommendation? To do what we are doing. He didn't even want to talk about radiation. So kinda a waste of my time!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: My turn for nerves

Well, that settles that.  But, I think like you, Kris, in that I like to prepare beforehand.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: My turn for nerves

Kris, you should have told him he could have told you before and you would have not wasted so much energy being nervous. Now you know and it must mean he feels all is working and why fix what is not broken!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: My turn for nerves

Okay, well that was kind of a let down after all the worrying (tongue in cheek). Too bad he didn't just tell you that over the phone rather than making you worry and stress about it. Glad though that you aren't forced to make a decision right now though.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.