May I ask how old are you?
If you want to live, and enjoy life as you suggested, I strongly recommend you to go to ER -and ask for a CT scan of the abdomen and pelvis, this is the quickest way to get a ct scan, Just say I worry about my illness to grow further. then choose one and go to ( either Mayo, USC or UCSF,Mass General, or Washington hospital at St. Louise Mo. )to get a multidisciplinary board review for you and get the most up to date information and diagnosis for your condition. As you said your doctor guessed you may have CCA; this is a good time to confirm the problem.
BTW, I will not have this chance to response to you had it not an early diagnosis was made because ,by the grace of God, I asked for one CT scan just for out of curiosity . It turns out the tumor I had, had been grown for a couple years before the diagnosis.
The worse thing is ,if you have ICCA, it can grow inside for years without symptoms . I did not have any symptoms when diagnosis is made.it is just happened this way so I can live to and talk to you and other members on this message board for the past 55 months ,and hopefully for many years to come.
Since you mentioned you are very determined to live : then let me say one thing more;Nowadays ,chemotherapy may be just a pill taken by mouth, not the IV you think you will have with side effects; i think this is very close to having treatment without the awful thought of suffering from chemotherapy. it is also true that there are better anti-emetic drugs on the market to control the side effects of having chemotherapy ; simply put, the treatment is a lot better than just 5-7 years ago.
But the final decision is all YOURS to make. Whatever your free will leads you.
Please know that my personal opinion is not intended nor implied to be a substitute for professional medical advice. If provided, information are for educational purposes.Consult doctor is a MUST for changing of treatment plans.