Topic: This week 4 years ago...
Hard for me to believe, but it was this week 4 years ago when my journey with cholangiocarcinoma began with itching, dark urine, and light stools. I saw the nurse practitioner at my internists office thinking that I was having an allergic reaction. When she heard my symptoms she ordered a CAT scan and blood work immediately. I asked her what she thought it was and she said hepatitis. When I heard that, I called my husband on the phone and started to cry. Little did I know that I would have welcomed hepatitis!
After that, things happened fast and I went to a GI doctor for an ERCP which caused pancreatitis and a 6-day stay in the hospital and a diagnosis of Extrahepatic CC and a consult with a surgical team. My Whipple was scheduled for 12/15 to give me time to get my strength back before surgery.
Surgery was 6 hours, a 6 day hospital stay. My ECC was staged at IIb, no lymph node involvement, clean margins, just small pancreatic involvement which was removed with surgery. Chemo followed beginning in January ending in July.
A few scares along the way, some which led to some unnecessary tests (liver biopsy for one), and here I am, 4 years later. My August scan was good so I don't have to return for a scan until next August (2014). Up until that scan, I had been scanned every 3 months.
I am sorry for the long post, but I wanted to just remind myself of the path I have taken. While I certainly didn't want to cancer (again!), I have found so many good things that have come with my journey. One of them is this site and the people on it.
I only wish with all of my heart that every one here could post a 4 year survival (or 5 or 6 or 7...or 20).
I pray for a cure for this disease and treatments that work and have few side effects and early detection.
My best wishes for everyone on here.
My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.