Topic: New Member to Board
I was diagnosed on March 21,2013 and was told I had 2-4 months if I did nothing. I consulted wth the Liver specialist at MSKCC (Sloan in NYC) on the 25th (DR. Yuman FONG). He offered to attempt surgery but first would look laparsopically and if I was not loaded with Cancer in Abdomen he proceed with BIG Surgery. TEXT went out to PRAY for BIG Surgery. I had the Surgery April 13th and was in hosp. 6 days. Got a Hepatic Pump implanted for Chemo to go directly into Liver and started Systemic Chemo + Pump May 15th. My Tumor marker CA19-9 has gone from 53,900 to 157 and I remain on Chemo/Pump Q2 weeks. My recent CT scan showed Stable disease with no new growths.
I had the opportunity this past Tues to meet with 3 members of this board, Kris, Chris, and Karen at Peddlers village for lunch. I will be in Trenton on Monday to Lobby for the Death with Dignity Law to be passed in NJ. I feel good now soo feel I need to be as active as possible and enjoy each day. I have been an Oncology Nurse/Hospice and facilitator for End of Life issues for 25 years. So glad this board is here as we all need help to navigate the system, share our experiences and get advice so we don't waste time geting appointments and tests done. So I thank you all in advance for any and all info and support.