Topic: Seattle Consult
Hi all I just got back over the weekend from my consult up at the Seattle Cancer Center. I really enjoyed the onc up there and it appears they deal and see a lot of cholangio patients, up to 60 a year he said. For the most part he was agreement with the plan of action that my current onc has reported. Finish 8 cycles then possibly attempt the y90. However Dr. Harris (in Seattle) did mention that y90 he feels is most beneficial on shrinking tumors when they are smaller than mine, that y90 is a good choice for me if I continue to not be a candidate for surgery. He didn't say it's a last resort but he did say that with gemcis and y90 its rare that to see significant shrinkage and the y90 would just again, be mostly palliative and prolonging my life. He did say he was happy to see over 3cm of shrinkage in about 3 months and we are anxiously awaiting the next scan on the 16th of this month. Dr. Harris would like me to come back to Seattle after the scan to consult with one of his surgeons. Considering the size of my tumor and I am anticipating after the scan, it most likely will still not be enough shrinkage at this time. I don't want to feel that all hope is lost and that I am just doing this to prolong my life and that's hard. He was very caring and knowledgeable but also very direct and I liked that. I still have to believe in miracles and me leaving my 2 young children behind is still not an option for me I am not quite ready to settle for "NEVER" being a candidate for surgery and will continue my 8 cycles, get the scan and go from there. He also mentioned going back to chemo, and even possibly some clinical trials (but didnt mention which ones). I feel like the trip was worth it and I was glad to hear his opinion on my situation. Aside from some abdominal pain, and some mild effects from chemo I physically feel good and don't feel sick and I try and remind myself to be grateful for that. Well hope everyone is trying to enjoy getting ready for the holidays. Blessings to you all.