Re: New to the Site
If the time line was correct, that is from June 24 started to use FUDR pump and alternate with GEMOX and get 70% reduction on the Oct follow-up CT scan; that was a good progress in just 3 mnoths.
Then from Oct to about 3 weeks ago (middle of Nov.);In about just a month's time,development like you described,--"She was beyond shocked to have found a second NEW tumor of good size in the liver and a lesion on the bone on his lowest left rib. She prescribed a PET Scan next week, and an appointment with a Radiologist December 18th to begin Radiation treatment." It looks like the oncologist pretty much thought that the chemotherapy will no longer works, and depends of the PET scan result, they will use radiation like IMRT or SBRT for continuing treatment. If so, can you also ask them to provide a 2nd opinion on interventional radiologist (IR) for consult for chemoembo or radioembo possibilities.
Please mention to your oncologist if possible for her to prescribe targeted therapy agents like Tarceva or sorafenib .even though the tumor is unresectable.
Ask or insist the oncologist to recommend you for a clinical trial in your area . NCCN actually encourage patients to go through clinical trial for unresectable cholangiocarcinoma.
I know there are a few at Mass general and Sloan-kettering .
If your husband still have night sweat, tell the doctor too.