Topic: ASCO Annual Clinical Advances Report 2013

Clinical Cancer Advances 2013

ASCO's Annual Report on Progress Against Cancer -

http://www.cancerprogress.net/clinical- … al-cancers

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

2 (edited by marions Tue, 10 Dec 2013 19:43:00)

Re: ASCO Annual Clinical Advances Report 2013

Mention of biliary cancer - but not addressed in their comments.  The never ending dilemma we continue to face in respect to research development. 

At FDA Rare Disease Day I spoke with Stephen P. Spielberg, M.D., Ph.D., then Deputy Commissioner for Medical Products and Tobacco, about the difficulties patients such as our encounter.  He acknowledged that foundations such as ours are the major vehicle in driving disease recognition and subsequent research forward.  In his presentation he referred to the success of the Cystic Fibrosis Foundation, which was instrumental in bringing a drug to the market for those (I believe 5% of patients) found to have a specific gene mutation.  This development took 20 years. 

Fast forward to the Myelomas Foundation which, in my opinion has made enormous strides and sets an example for disease specific foundation.  With their input and collaboration with specific researchers and biotech companies (large and small) their disease has been addressed in incremental steps.  It still is considered a fatal disease however; life expectancy has greatly increased due to the development of specific life extending drugs. 

Just thought to share.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: ASCO Annual Clinical Advances Report 2013

Marion,

I just want to thank you for your tireless work on behalf of those of us dealing with this beast of a disease. 

I send blessings your way with hugs and my most profound gratitude for you and the other moderators.

Love & Peace,
Mary