Topic: ALPPS

Hi all,

We've just had a very hopeful letter through from our lovely surgeon, saying that the surgery he plans to do on my mum is a new technique called ALPPS. I understand that it involves two ops, firstly to clear one side of the liver of tumours - this side is then left to grow for a week or so. The second surgery involves removing the remaining 80% of the liver containing tumours.

Has anyone had any personal experience with this surgery?

Thanks, Jules

Re: ALPPS

Jules....I believe that this is a procedure performed more often in Europe and South America than in the US.   

Although, I don't have any personal knowledge I thought it might help to post a description:  http://communications.uwo.ca/western_ne … arch_.html

http://www.alpps.net/?q=about

Hoping for others to chime in and share their thoughts.  A special invitation goes out to those perusing our site but hesitating from becoming official members.  Please take the few steps and join in.  We appreciate your input.

Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: ALPPS

Jules....I believe that this is a procedure performed more often in Europe and South America than in the US.   

Although, I don't have any personal knowledge I thought it might help to post a description:  http://communications.uwo.ca/western_ne … arch_.html

http://www.alpps.net/?q=about

Hoping for others to chime in and share their thoughts.  A special invitation goes out to those perusing our site but hesitating from becoming official members.  Please take the few steps and join in.  We appreciate your input.

Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: ALPPS

Thanks for posting this info. Marion. We are both excited and terrified about this operation. It's scary that there is little knowledge about long-term outcomes but on a positive note, our surgeon has just performed it on an 85 year old man, who survived and is currently doing well. Any thoughts from other members would be greatly appreciated.

Jules x

Re: ALPPS

No personal experiences of this Jules but I wish your mum every success with it. Is it Hilar CC that your mum has, I forgot.

Best wishes to you and your mum,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: ALPPS

Hi Gavin,

Thank you. No, mum has intrahepatic CC, stage IV.

Jules

Re: ALPPS

Thanks for that Jules. Reason that I asked is that I read some stuff about ALPPS not being suitable and being very risky for Hilar CC.

My best to you and your mum,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.