I wanted to share our progress so far and a little bit of good news. My dad received his first round of FOLFOX on December 12th. During his second treatment on December 27th, he had an allergic reaction to the Ox and had to discontinue treatment after only 20 minutes. We had to be transferred to Brigham and Womens Hospital, so that they could monitor him for the next 4 hours before sending him home. He went home with two days worth of steroids and amazingly, these took away all of the lower abdomen pain he had been experiencing since he was diagnosed. It is my thought that these somehow reduced the inflammation he was having which I related back to his records stating that he has mild diverticulitus and colitis. On the 8th, we went for a second opinion at MGH and met with Dr. Zhu who was the most compassionate, intelligent and patient Doctor we have met with thus far. He did state that the treatment of FOLFOX was the right move, but he also said that he has a lot of "tricks up his sleeve" for treatments. He heads up many clinical trials and does a lot of research specific to CC. He did say my dad is just one of the unlucky ones that not only had it come back so quickly, but also aggresively.
Because of his allergic reaction to Ox, he now has to be tested for the true allergy. Then we have to decide whether or not he wants to be de-sensitized. This means either a very long day in infusion or even inpatient infusion (depending on if we continue at Dana Farber or switch to MGH).
My dad is having infusion as I type this, but it is only F-5U.
I wanted to start this paragraph off by saying THANK YOU to Percy. A few weeks ago, I sent my dad's CT scans to Dr. Moeslein from the University of Maryland. He just called me a few minutes ago and said that my dad is a great candidate for radioembolization. This had not been offered to us at Dana Farber. I asked Dr. Moeslein why and he said because a lot of hospitals do not want to take the risk because they do not have a lot of experience with this procedure. Dr. Moeslein said that this isn't a short term (say 6 month) fix, but that it has the ability (with good response) to produce long term results. He has one patient that was in a situation worse off than my dad that is 5 years out because of this procedure.
I have yet to share this news with my dad, but hopefully once he talks to Dr. Moeslein (who gave me his cell phone number and said call anytime!) he will be excited about this opportunity.
I know I say it all the time, but I can't stress how important this board is to us and how grateful I am that it has connected me with some of the most amazing people that have let me into their lives and shared their stories with me.
Daughter and biggest supporter of the strongest Dad on earth!
"Attitude is a little thing that makes a big difference." ~Winston Churchill
"A happy person is not a person in a certain set of circumstances, but rather a person with a certain set of attitudes." ~Hugh Downs