Topic: Good News - CT Scan of 1/7/14

Hi Everyone,

I am happy to report that my CT scan showed a 10% decrease in all my tumors!!!  This is after six Gem/Cis treatments.  So based on the good news, we've decided to stick with this treatment.  I am taking a three week break from chemo and going to Florida to visit family and then do a five day trip to Key West!!!  I leave on Wednesday, 1/15 and will be happy to get out of NJ and the cold, cold weather and snow we've been having.  I will start back up on Gem/Cis on 1/29.

I did have two major issues with this treatment.  One is my stomach was distended so much that it made me uncomfortable and almost impossible to fit into normal clothes or move around normally.  Because of that, the doctor sent me over to the hospital today and they drained five liters of fluid from my abdomen.  It was amazing the instant relief I felt.  They will have the fluid checked but the doctor is not too concerned about it.  She said there may be cancer cells in the fluid but suspects the fluid build up is more from the portal vein blood clot I have.  These types of clots do not travel to the lungs or heart so there is no danger in that or a need for blood thinner.  I am going to start taking water pills tomorrow (Saturday) and will be re-assessed for that when I return from vacation and start treatment on 1/29.

The second major issues with the Gem/Cis was extreme feet and leg swelling.  I am seeing a lymphedema physical therapist and will have leg wrapping done for that when I return from vacation.  I will see her before I leave and she will show me techniques that I can use to make me more comfortable while I'm away.

Thank you all for your prayers and positive thoughts.  Everyday I pray for the cholangiocarcinoma family, and our caregivers, and ask for new treatments to help us fight this terrible disease.

Peace to all,
Mary

Re: Good News - CT Scan of 1/7/14

Mary....I am over the moon for you....the trip to Florida is around the corner.  Enjoy, dear Mary but then I know that you will do just that.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Good News - CT Scan of 1/7/14

HI Mary great news to hear that the treatment is working and they are seeing decrease in size.  It sounds like you have a wonderful trip planned, go enjoy and try to relax.  I hope you find some relief from some of these other side effects you are having.  Take care.

Hope, love, strength...2013 and for the years to come, Porter.

Re: Good News - CT Scan of 1/7/14

Dearest Mary, Great, great post! I am so happy for you and then to get to take a trip on top of it! Love, love Key West. You so deserve this break and also to get under that wonderful warm sun. My wish for you is to keep the good news rolling!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Good News - CT Scan of 1/7/14

Dear Mary,  What wonderful news.  Enjoy your trip and especially Key West.  Stay strong stay positive and have a great time.  Looking forward to hearing more good news from you in the future. 

Love & Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Good News - CT Scan of 1/7/14

Congratulations, Mary!!!!  I'm so thrilled for you!  What a lovely present before your vacation.  I hope you have a fabulous time in Key West!  My parents went last year and they loved it. 

Here's to even more shrinkage in 2014!!

Love,
Caroline

Re: Good News - CT Scan of 1/7/14

Great news!  Enjoy your trip.

Re: Good News - CT Scan of 1/7/14

Great news Mary, thanks so much for sharing it! Hope that you enjoy your trip to Florida and I am sure that you will not miss the snow and ice down there! Have a great time!

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Good News - CT Scan of 1/7/14

Mary,
Thank you for sharing this news... The fabulous news and the details about ascites. This helps more than you know.
That is SUCH good news about the gem Cis working! Also very happy to hear you're taking a tiny break to vacation.. Enjoy yourself!

Willow

Re: Good News - CT Scan of 1/7/14

Great news Mary!  So happy you are getting a chance to travel to Florida and see family - and oh...the Keys.  What a wonderful place to just relax and let go.  Have a fabulous time - you so deserve it.

Wishing all God's blessings!

Re: Good News - CT Scan of 1/7/14

Great news to take on vacation with you!  Enjoy your time away.

Hugs,
-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Good News - CT Scan of 1/7/14

Wonderful news Mary! I wonder if I could stow away in your suitcase....It's not so cold here in the NW but the rain is awful right now. Have a great time on vacation.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.

Re: Good News - CT Scan of 1/7/14

Thank you everyone for your kind words and continued encouragement going forward.  I wish you could all come to Key West with me and we could stand on the beach and stamp out cholangiocarcinoma for good!!!  I will continue to pray for everyone, including our caregivers who endure so much for us.

Stay strong and thanks again for rooting for me!

Peace,
Mary

Re: Good News - CT Scan of 1/7/14

Yay, Mary!! I was hoping for some good news for you!! Wonderful! Now, go enjoy your vacation. You've earned it!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Good News - CT Scan of 1/7/14

Thanks Kris.  I'm so looking forward to vacation - we fly out this Wednesday!!!

How are you feeling these days - did you get over the cold symptoms you were having?

Mary

Re: Good News - CT Scan of 1/7/14

Wonderful news, Mary!! Have a lovely vacation. You sure deserve it!!

My beautiful daughter, Lauren Patrice, will live on in my heart forever.

My comments, suggestions, and opinions are based on my experience as a caretaker for my daughter, Lauren and from reading anything I can get my hands on about Cholangiocarcinoma. Please consult a physician for professional guidance.