Topic: Photodynamic therapy in unresectable cholangiocarcinoma: not for the u

Photodynamic therapy in unresectable cholangiocarcinoma: not for the uncommitted.

http://www.ncbi.nlm.nih.gov/pubmed/23964337

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Photodynamic therapy in unresectable cholangiocarcinoma: not for the u

Gavin,

Are you aware of any other U.S. centers besides Mayo and Cornell that are doing PDT for unresectable cholangiocarcinoma?

My otherwise healthy 81-year-old mother has newly diagnosed asymptomatic, locally advanced, unresectable CC.  We are seeking supportive treatment that will reduce the probability of cholestasis and cholangitis and improve her comfort/quality of life as her disease progresses.

thanks so much,
Grace Thrall MD
Chapel Hill, North Carolina

Re: Photodynamic therapy in unresectable cholangiocarcinoma: not for the u

Dear Dr. Thrall. Welcome to our remarkable Family but sorry you had to find us. Gavin will be off the Board until Thursday but I am hoping someone else may come along and be able to be of some assistance to you. I am so sorry to hear about your Mother. Please hang in as I know there will be members coming along who can help answer your question. Best wishes.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Photodynamic therapy in unresectable cholangiocarcinoma: not for the u

Dr. Thrall....welcome to our site.  Several of our members have been treated at Duke:
http://www.dukehealth.org/cancer/patien … ntestinal-
cancer/programs/gallbladder-cancer
Not sure whether they offer Photodynamic Therapy however; they have extensive experience with CC patients.  You might want to contact their interventional radiology department.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Photodynamic therapy in unresectable cholangiocarcinoma: not for the u

Dr. Thrall,

No other answers beyond what Marion and Lainy have said, but just want to welcome  you to our wonderful family.  Hoping others will be along soon that may have more information for you.

Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Photodynamic therapy in unresectable cholangiocarcinoma: not for the u

Hi Dr Thrall,

Welcome to the site. I believe that Dr Kahalel is running a PDT trial at Mass General I think. I was in contact with someone from the site a while ago and I'm sure that they said that their mum was going to be doing that at Mass General I think.

http://nyp.org/physician/mkahaleh/

I'm sure that if you contact Dr Kahalel he would be able to provide more info for you.

My best wishes to you and your Mum,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.