Topic: Intro- Hoping for a long road ahead
To introduce myself- Life changed in October when Mom (74, healthy) was diagnosed with CC. It was found through a routine blood test- no symptoms. The "good" was that we thought she would be able to have the 6 cm tumor resected, but after opening her up, they saw that the location and spread of the tumor made it inoperable.So, closed her up and now looking at way forward.
She went through 3 cycles of Gen/Cis. After first week, we didn't think it would be tolerable, but adjusting meds (adding emend and 4 days of steroids) improved side effects so drastically that she was able to go without the other nausea meds (reglan and zofran) and finished 3 cycles. The first round was also difficult since she had not healed completely from the surgery.
Scan after chemo showed a 20% reduction in tumor Very good results, but asked oncologist and was told that tumor still will not be resectable in future due to location and morbidity risks.
Next step is Y-90 spheres- mapping will be next week. There is a chance that the right lobe is involved, but hoping only the left- mapping will confirm. They also discussed doing cyberknife down the road if the the tumors reacts well to the radiation. My thought is if we can't remove it, let's just kill it
Mom feels great now that chemo is done; hard to believe she is sick. I'm hoping that since she is otherwise healthy, liver function good, and chemo did show a positive result, that I will be a member on this group for a long time to come.
Mom has heard the "year" for non-resecatable CC, but I'm trying to convey to her that we can look for longer; it is not hopeless. My daughter will be getting her PhD in 3 years, and I'm trying to tell her that it is not impossible that she will be with us to share in the celebration.
I've been reading the board for a while now and truly appreciate the kindness and information that is shared through this community.
So.. I have been scanning boards... if anyone has a 3-year non-surgical survival story to share, it would be appreciated. Otherwise, I guess we'll have to hope to pave the way.
Thoughts and prayers to all families and friends that are sharing this journey.