Topic: Good News
I was diagnosed with CC last August with fairly large Tumors (which I described in prior posts last November) involving both the Left and Right Liver lobes and also some nodule mets indicated in my lungs - I began Chemo Gem/Cis in September and completed Cycle 6 (once a week for two weeks and every third week off) a week ago -
I've now done four CT scans - The original done in August, the second done in early October, the third done in late November and the last done last Friday - The second scan showed very minor changes and a couple of small new mets when compared with the original scan - The third and fourth scans showed no new nodules and no growth but also no shrinkage either -
My oncologist is thrilled because my condition is now considered STABLE - He originally planned to have me take a month or two break from the Chemo schedule to give my body a rest - However, inasmuch as I have tolerated the Chemo extremely well (no nausea, loss of appetite, no loss of weight, etc - only a little fatigue for a day or so after each treatment) he agreed we should continue the schedule for the foreseeable future -
So, I guess this is good news!!!
At the risk of overstaying my welcome on this board by writing an overlong post I'd really appreciate a little advice -
I'm in the process of setting up arrangements to get a second opinion because I've never really gotten a detailed first opinion - Frankly, although the CT scans clearly show tumors and nodules I'm not entirely sure my condition has been properly diagnosed - It appears to me that everyone diagnosed with CC has experienced some of the classic symptoms (fever, itching, jaundice, back pain, pain in abdomen, etc) but I have never experienced any of these symptoms now or ever so I wonder about the diagnosis - I'd appreciate any comments anyone might have about this -
My intention is to set up a multidisciplinary second opinion appointment in the near future - I'd really like to set it up at Case/University Hospitals and/or Cleveland Clinic in Cleveland - I'm wondering if anyone can recommend a knowledgeable specialist at either of those facilities -
I apologize for the length of this post and want to herewith thank those of you who have had the stamina to persevere through this tome!!!