Topic: Biliary Catheter works!! Bilirubin count down from 600+ to 55
It's been a while, so for those of you who know my story, just though I'd provide a little update on my dad (Martin).
For those that don't know and are interested, you can read up on his long standing battle here: http://www.cholangiocarcinoma.org/punbb … hp?id=9869
So having had the biliary catheter inserted back in November, dad's bilirubin count has dropped significantly and he is finally beginning to look more like his normal self, with Jaundice almost completely gone!
At the time of the operation his count was at life endangering levels of 600+ (think it was 627 to be precise). Having just had some test results back this morning it has incredibly dropped right down to 55.
We are told the average persons is normally around 20-30 so a little way to go, but this is the lowest it has been since June/July 2013.
In the last week or so the external drain seems to have stopped draining, which we are a little worried about as we thought it might be blocked...However at the time his bilirubin count was at 87 and in the last two weeks has dropped down to 55.
He started taking some medication to ease his diarrhea and it seemed there was a strong correlation between this and the catheter stopping from draining externally...we are told this is just coincidence having spoke to our GP, the cancer nurse and the specialist at the hospital. None the less they changed the medication just to be sure. So far it hasn't made a difference, so I guess it rules that out.
We also tried flushing the catheter with 10mm of saline solution but it doesn't seem to have changed anything.
Anyone with any experience of biliary catheters? is it normal for it to just stop draining externally?
The doctors seem to think that the fact its not draining externally is a good thing and must mean that the bile ducts are finally allowing bile through in internally.
We have scan results next week so fingers crossed we have some good news in that the tumors haven't grown or spread.
At this stage he has still has undergone no chemotherapy at all, only the 80% liver resection which was undertaken 6 years ago today.
All the best everyone.