Re: Coping with my dads diagnosis..
Thank you for all of your responses.
It's been a while since I've been on here to actually write anything. I wanted to update on my dad and see if anybody might have some answers to a few questions that I have.
for the past over year now my dad has been doing chemotherapy, gemzar/cysplatin, and about six months ago he decided to move to Florida. This has been very hard on me and my Younger sister, as we both live in New England. We do fly out to see him from time to time but what bothers me the most is that he is down there on his own. For about a year he been doing chemotherapy and not much had changed. As of recently, things are getting worse and things are becoming harder and harder for him to do which is what concerns me most about him being there without any help.
I would like to find an organization or company that can help him with food or preparation does anybody know of anyone in the St. Cloud Florida area which is about 30 minutes outside of Orlando that could help?
He has also lost a lot of the feeling in his hands and feet along with a lot of discomfort and is taking Lyrica for neuropathy.
two weeks ago he started to experience severe pain and bloating in his stomach. When he went to the doctors he had 2 L of fluid drained from his abdomen. A couple days later he started to feel the pain again, went to the doctors again and had almost 11 pounds of fluid drained a few days later. Yesterday he went to the ER with stomach pains and has not yet been discharged. I'm very frustrated because I have to leave a message with the doctor who never calls me back to tell me what's going on. I know they put him morphine so he could sleep and he will be having a pluerex catheter put into his stomach tomorrow. A nurse told me he now has C-diff as well.
Has anyone experienced this fluid and pain in the stomach and what does all this mean?
I don't know what to do. My grandma is taking a leave of absence from work and flying out in a few days. I don't know what all this means in regards to what point he's at with this cancer. I'm in school so it's hard for me to decide if I should go now, cause who knows what might happen next week...my sister and I went to see him last month and I was going to go again in April or May. Feel lost for answers. The doctors don't get back to me.
I don't want my dad to be in so much pain.. I'm scared they are going to start consistently giving him morphine because I feel like that will be the end. He was taking steroids 2 days after chemo and those were the only days he ever felt good. Now they told him not to take the steroids anymore.
All I could have hoped and prayed for at one point is that this would go away and he would get better. All I want now, is for him to not be In pain. Everyday he's hurting, physically and emotionally.
Today he told me he's not really to leave me, and he can't accept this... I'm not ready either, and neither can I. I'm haven't been able to find the strength to really accept this.. People say over time you learn to accept the things you can't change and it gets "easier". Things are only getting harder and harder for everyone. My heart and soul is broken. Everyday when I wake up it's like hearing it again for the first time... Except he's sicker and in more pain < that is what breaks my heard.
If you have any suggestions or information at all I would really appreciate it.
Thank you all for being there. <3