Re: Survival...Please tell us your latest milestone

Eric-

So happy for you and thank you for sharing!  It gives hope to others who are newer to this forum.  Would you mind letting me know if you are still on the Gem/Cis or did they modify the chemo?

Wishing you a long, long time of continued stability.

Catherine

Re: Survival...Please tell us your latest milestone

Good Friday is always special to me.  Good Friday, 2009 I officially became a member of this small club. Today, five years later, I am still a member, although slightly inactive.  I have been very busy living! Despite the statistics, some of us make it through.  I am so grateful for the past five years, I can't express it.

Re: Survival...Please tell us your latest milestone

Catherine, I stopped Cisplatin in mid-Sept. due to neuropathy.  Once the platinum cleared out of my system (about 90 days) I felt much better.  Less chemo-brain & fatigue.  So far the Gencitabine is working on its own.

How are you doing? 

I marvel that I am doing so well....going to NY Auto Show today with my adult daughters.  FUN!

Re: Survival...Please tell us your latest milestone

John Thomas, Happy Easter to You and yours! I love it when I wake up to this kind of post. I am so over the moon for you and how you progressed! We so need these kind of HOPE posts! Best wishes and continued good luck.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Survival...Please tell us your latest milestone

I finished IMRT in Early November, then returned to MD Anderson in January for a PET scan. It was clear and my CA 19-9 was 10.2. Dr. Javle said I was clear to go three months with NO treatment.  I came home and felt the best ever in a very long time. I just returned for a checkup after that (3 months later) and scan are still clear....no lymph nodes are bothersome to them or any concern. Tumor is mostly necrotic and inactive. My CA 19-9 at now at 11. The dr said it was the best report ever since coming to MD Anderson. I was diagnosed in Feb of 2011 and started seeing Dr. Javle in April of 2011....after going to Mayo who gave no hope whatsoever....this wasted a few months but totally worth it with the expert care I receive from Dr. Malind Javle and MD Anderson. I am biking 10 miles on some days and walked in a 5K over the weekend. Feeling better and better every minute of each day. Feeling very blessed and thankful!!

Re: Survival...Please tell us your latest milestone

John Thomas and Patti from Illinois,
Thank you for sharing your wonderful stories! Great to hear you're staying busy living and loving!

Willow