Topic: Social Security has an obligation to provide benefits quickly

http://www.socialsecurity.gov/compassionateallowances/

According to the list it appears that intrahepatic is included however; I don't see anything on extrahepatic or bile duct.

Has anyone received accelerated approval for extrahepatic cholangiocarcinoma?

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Social Security has an obligation to provide benefits quickly

We didn't need it as CIGNA came through like a breeze however, we did find out that if the Insurance Company said no to a PET Scan the ONC intervened and the no became a yes. So not be afraid to ask your Doctors to intervene.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Social Security has an obligation to provide benefits quickly

My last PET scan was delayed and then denied by insurance. My oncologist made the call and intervened and it was approved. My insurance states that there is a lifetime maximum of three PET scans after initial diagnosis and I have had three. I advised my doctor that I never want insurance limitations to dictate my health care and he agreed.
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Social Security has an obligation to provide benefits quickly

marions wrote:

http://www.socialsecurity.gov/compassionateallowances/

According to the list it appears that intrahepatic is included however; I don't see anything on extrahepatic or bile duct.

Has anyone received accelerated approval for extrahepatic cholangiocarcinoma?

I am extrahepatic and received SSDI right away. I applied in Jan. 2014 and heard back from them in Feb saying they approved and my first check was deposited by the end of Mar. A few questions over the phone and I did not have to see their Doc in order to qualify. That was it.
jgo

A thousand words will not leave so deep of an impression as one deed.

Re: Social Security has an obligation to provide benefits quickly

jgo....thank you so very much for chiming in and sharing this important information with us. So good to know that all our patients including those with extrahepatic disease are eligible to received SSDI.  What would we ever do without the incredible input from our members?  Thanks again, dear jgo and a warm welcome to our site.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER