Topic: Post Radiation
Well, I figured since I had started to hijack LisaS' post, I figured I start my own.
Mark has not done well post-radiation. The radiation ONC blames it on the chemo and the medical ONC blames it on the radiation. I think it's a little bit of both. They had to work hard to get this round of radiation around the radiation from when he was a kid. Also we found out that when they removed the left lobe of his liver that his stomach slid to more mid-line so when they radiated the tumor bed, they got the stomach. And the 5FU is pretty rough for him so it's just a double whammy. He feels like stuff is sticking in his esophagus even though they tell us (and showed us) that they weren't hitting it. Anything with texture feels like it sticks. He's living on MaltOMeal, soups like chicken noodle and tomato and protein shakes. However he has no appetite so its not much when he eats. Weight is down to 179# this AM.....which is 15# less that his lowest after surgery. Ugh! Looks like a stick man.
He started his Megace tonight after much debate and argument. He was okay with it until the doc told him it was a female hormone. I had to promise him that it wouldn't change anything (and nothing would fall off Lol). He did take once I got it tonight.
He is still walking out to get the mail most days unless it is raining too hard and he is pooper scooping some after the puppy, of course that's because he knows I will mow over it if he doesn't.
We have talked about TPN or a J-tube. I am leaning toward TPN since it won't require another procedure. We see the doc again tomorrow for labs and fluids. A lot will depend on his protein levels. If they are down (were low but not worrisome last set of labs) then we will have to consider it.
And to top it off I went back to work on Monday, half-ish days for now. I finally after a year ran out of FMLA. Although my employer is still working with me as best they can. Mostly I need to keep the insurance. And I applied for a new job.....looking at working in a clinic with long term disease management. We'll see.
Thanks all for your support.