Topic: Recurrence Rates

I'm told and read about how cholangiocarcinoma has a nasty habit of recurring after resection.

What kind of data is there to support this belief? Are there studies with results somewhere online? Does someone here at the foundation have data?

I'm curious about how recurrence of CC compares to other cancers too.

2 (edited by marions Fri, 25 Apr 2014 14:36:16)

Re: Recurrence Rates

Matt....please remember that this type of information gives a general overview only.  It is not set in stone and it may not fit your criteria.  We have to be careful when reading information such as this, as it can be upsetting and it does not take in account the clinical and molecular behavior of a specific patient.
http://www.cancerresearchuk.org/cancer- … uct-cancer
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Recurrence Rates

Additionally and of great importance is to recognize that the increasingly aggressive treatments available for our patients continue to prove that this cancer can resemble that of a chronic illness. 
Drug development places much focus on the molecular behavior of the individual patient eventually leading to "personalized" medicine.
Radiation has taken on a greater role, allowing physicians to accurately target specific areas while sparing healthy tissue.
Complex surgery techniques allow for more accurate and precise removal of tumors. 
The list goes on.
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Recurrence Rates

Something I was told too about the numbers is that was are reading the past with survival rates and recurrence rates, not what is happening now or what will happen in the future as treatments change. In five years we can look back and see what the survival rates for right now are.

I hope that makes sense. I too worried about recurrence for Mark initially but we decided not to talk/think/worry about it until it happens. But I have to confess it really will always be in the back of our minds. And I think it is that way with any cancer.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.

Re: Recurrence Rates

Matt,  I understand your questions, as you and I are going through some of the same issues at the same time.  As a post surgical curative intent CC patient, we're told that there is a chemo we can do that might or might not kill microscopic cancer cells that can't be seen and may or may not be in our bodies still lingering after having the visible cancer removed.  It's an awful decision to make, to subject yourself to the chemo for which may make no difference in our outcome and survival.  I made the decision to move forward with the post surgery chemo, in hopes that it really isn't necessary, but on the off shoot chance there is a cell or two, the chemo might kill them.  Today, I had a port installed in my chest....one hour procedure in the hospital by an interventional radiologist.  Though I was awake the entire time (even with conscious sedation, I got through it okay (except for when the Int . Rad. doing the procedure used my abdomen for a table for his instruments...and let them drop directly on the still healing incisions).  But, right now, I can't turn my neck, can't raise my right arm, can't swallow without some pain, and in general, I hurt and just am sick of this whole cancer crap.  What's new?  We all are tired of it.  There ARE bad days...and this was one of them for me.  So, for the next three to 5 months I will go through 4-6 rounds of chemo of three week intervals with Gem and Cis and hope and pray it will be the last big treatment for this.  I have a pretty good idea of the odds of this returning, even after doing chemo, but I don't gamble.....I get nervous putting a quarter in a slot machine, so that is why I'm doing the chemo now.  AFter I wake up in the morning, for a few moments, I contemplate getting out of bed, getting a shower...and then, it hits me...oh yeah...the cancer, "I have cancer."  Will that ever go away?   I doubt that it will ever go away, but am sure that, in time, it will not be the first thing on my mind once I"m through with the chemo.   I firmly expect that I am not going to have a recurrence, even without the chemo.  But, I'm married to an electrical engineer and they typically "overbuild" things....deal with redundancies to avoid problems.  I view this chemo as a redundancy....for that "just in case," failure of surgery.   However, if the chemo was a sure thing...that they knew it worked after surgery for microscopic cancer cells, it would make the decision a no-brainer.

Julie T

"Just for today, I can get through anything."  Hey....I'm a cancer survivor, not a doctor.  The opinions I state are my own, based on my personal experiences or knowledge.  As always, talk to your doctor about your concerns and treatment.