Topic: Help...two days post port implantation....running temp

I had a port implanted on Friday.  Last night, I woke up with chills and very slight nausea....temp about 98.2, which is about a degree more than I usually run.  By morning, i was 99.5....then up from there to 100.  We called the radiolgist who did the procedure...and since the temp wasn't over 101, and the skin doesn't look red, he wasn't concerned yet.  This is, however, the same guy who initially told me in the OR that he was implanting some dialysis device.  I told him no....and he said, "Why not."  AFter i told him because I'm here to get a chemo port, he wanted to know WHY.  I had to further explain that it was because I had cancer and was starting chemo on Tuesday.  The techs in the OR also had to remind him to flush the port....and now I can't remember if he used heparin or not.

So, now I am kicking myself that I didn't go back up to Mayo to have this done and start chemo up there.  But that's over and done with...so pushing on....

Has anyone run a temp or had very slight nausea aftr having one of these ports implanted?  I don't have a lot of confidence in this guy right now and don't really know how to proceed. 

This could be some garden variety bug that I caught while at the hospital.....but what to do.  With chemo starting on Tuesday, the radiologist said I might have to hold off.  I wamt to be proactive about this, but don't know what to pursue yet...other than going to insta care walk in to maybe have a strep test. 

Any ideas...any thoughts.

Just for today, I can get through anything.  "Never let fear decide your fate."  (from the band, Awoination.)

Re: Help...two days post port implantation....running temp

My husband who has cc, has been told by his oncologist that anytime his temp. is over 100.5 he needs to be on antibiotics, but I'm sure this can be different for each patient.  I suspect that you have an infection.  Can you call the surgeon on call and have them give you a prescription for an antibiotic without them seeing you again.  If not, can you go to an Urgent Care Center or would your only choice be to go to an ER?  If I were your Caregiver, I would be a little concerned and if your temp goes up any higher, definitely get you to a Dr.  Good luck!

Re: Help...two days post port implantation....running temp

Hi Iowagirl,

Sorry to hear this news and yes, a temp could well be a sign of infection. Can you call someone other than the radiologist who did this procedure and speak with them about it? A trip to the ER could well be in order to keep on top of this and personally that is something that I would do. They will look into that that and take care of this there. Please let us know how you get on with this as well if you can.

My best wishes to you,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Help...two days post port implantation....running temp

Julie...I agree with the others.  Elevated temperatures are not to be ignored.   would call the doc.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Help...two days post port implantation....running temp

Julie, DITTO to all that Snowbird said and Teddy's ONC told us several times the same thing about 100o. Chills and fever are usually first signs of infection.
I would go to an ER as they are more equipped to DX certain infections.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Help...two days post port implantation....running temp

we called the local oncologist and after an hour+ he called back and after hearing what my symptoms were he wanted to meet me at his clinic (about 8 minutes from our house)....on Sunday no less....so maybe when we saw him on the 21st (Monday) he was having a bad day.  The 101 temp has now dropped (after a shower)  to 100.4.  However, after I dried and almost got to my bed to get dressed, I was suddenly really dizzy and nearly passed out (I'm not prone to fainting).  Sitting down didn't help and I quickly laid down on the bed and felt better.  The onc does want to see me in person, but mentioned getting an antibiotic going.  Thank you. Thank you. Thank you, for helping me through another bump in the road.  I was so upset earlier to think that the onc will want to post pone the first chemo on Tuesday.  Saturday started the 9th week post surgery and I'm getting nervous to get moving on this for the best chance to kill of any possible microscopic cells. 

As i posted earlier, we did called the interventional radiologist, who wasn't interested unless my temp was 101 or over.  We also called the cardiopulmonary dept where the implant was done....but got the same run around.  When the temp hit 101, and saw your replies, I skipped both those people and called the oncologist directly as the others really don't have a skin in the game concerning the chemo to start on Tuesday.  I'm sure my GP would have said to call the oncologist or the interventional radiologist, so I by passed her also. 

Will post later to let you all know what he said about this.

Julie T.

Just for today, I can get through anything.  "Never let fear decide your fate."  (from the band, Awoination.)

Re: Help...two days post port implantation....running temp

Julie, good work. I used to know what to look for as T had "blood infections 2 times a year". The dizziness and tiredness is part of it. I knew right away after the 1st one to just call the ambulance to go to ER as I couldn't get him to the car. He was 5'6" but was so strong, built like a weight lifting penguin!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Help...two days post port implantation....running temp

Julie, infection is (for me) a constant issue due to my biliary drain tubes. My oncologist brought in an infectious disease specialist to work with us. I've been on antibiotics since being in the hospital with a serious infection in February. Glad your oncologist was responsive. This cancer just plain sucks!!!!

Impatient patient.

Re: Help...two days post port implantation....running temp

Lainy, a weight-lifting penguin!!!  Thanks for the good laugh.  I have such a visual.

Impatient patient.

Re: Help...two days post port implantation....running temp

Julie -
I am glad that you persisted and are getting some attention. Out ONC says anything over 100 can be the sign of a problem. Mark had three different times that he had that problem after surgery. The first time was three days after his first port was put in. He ended up in the hospital for 5 days. By the third time they pulled the port but they believed it was actually a GI source which seems to have cleared itself. He went from Sept to April with no problems then a couple of weeks ago it popped to 101.7 but they never found the source.

I will say that Levaquin (levofloxacin) has been our best friend over the last few months. We have a long-term prescription from the ONC for it. As soon as Mark creeps a temp then we start it. Used it for an upper respiratory infection and once for a sinus then the last time for the unknown temp in April.

Also you can run a low-grade temp if you are dehydrated. Usually in the 99-100 range for most people.

I also wonder about the interventional radiologist that put in you port. We have had two of them and I have seen many placed and they have always been placed by a surgeon under light, general anesthesia. I wonder if there was a reason for that.

Hope things turn out well for you.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.

Re: Help...two days post port implantation....running temp

Julie, Kris is so right, Levaquin is the ticket. Every time this happened the ONC called for the Levaquin. He once said it will take care of anything.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Help...two days post port implantation....running temp

LisaS, glad you liked my synopsis of Teddy. He was a short Sicilian with bow legs and this sounds terrible but he did have a kind of wobble. His favorite animal was a Penguin! In fact after he passed 2 of my Grandsons had Penguins tattooed on their backs. I have told this story before but I know Marion loves it so will post it again. Teddy was a very smart man but he was not good with pronunciation of words and for the whole 5 years he could never say Cholangiocarcinoma. One night we went to our favorite Italian Restaurant with a couple from Milwaukee. Rocco looked at T CC bracelet and asked what that was. T says, oh, that's my cancer......Angelo Carcinoma. I had to turn to the wall as we never laughed at him but I was thinking, leave it to my Teddy to make a Sicilian out of his cancer! And that was my knight in shining armor!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Help...two days post port implantation....running temp

I'm on my second dose of levaquen in a row, because I spiked a fever Friday night. Had just finished a 7-day Rx Thursday. I also have a 30 day Rx of amoxicillin from my infectious disease guy. I spiked a fever again this afternoon while out with our son and his family and had to come home. I may be on the verge of calling in after hours, but I hate to miss the hockey playoff game (it won't be on a channel at the hospital). But, if temp stays, I will call.


Lainy, I think I adore teddy.

Impatient patient.

Re: Help...two days post port implantation....running temp

You know that just cracked me up. We have made decisions that way too. Gosh, I really don't want to call right now.....we know they will make us go in and now's not a good time. The worst times was when my son abscessed after his surgery and HE wanted to wait until later in the afternoon to call so he could finish something up. I let him.

Temps seems to be part and parcel of this disease process. Mark's GI doc said that in his case it was to do with narrowing of the surgical connection between his liver/bile ducts and the small intestine. Causes the small intestine contents to pull/back into the liver/bile ducts. They wanted to put a stent in but that too increases the risk of infection so we declined.

Hope your temp stats down so you can watch the playoff game.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.

Re: Help...two days post port implantation....running temp

LisaS you would have loved him. He was a man's man and a ladies gentleman!
He was a charmer and NEVER talked bad about anyone. He just did away with them. I'm joking! Kind of. Say, his Sister who is like a sister to me lives in Ft. Worth. She has called me every day since he passed. His kids call me as well. I feel I had for 16 years what most never have in a lifetime. The trick is nailing them at the right time! Timing is everything!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Help...two days post port implantation....running temp

Glad to hear that you got some help with this Julie and I hope that the antibiotics work for you.

Best wishes,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Help...two days post port implantation....running temp

Thank you, one and all, for your support and suggestions for my temp problem.  This morning my temp was 97.2.  smile  We went to see the oncologist at 4 p.m Sunday and his conclusion was that it was an infection in my lower, right shin, based on the skin being very hot.  It's been reddish and warmer on that side alone, since 2010, when I took Metoprolol ER as a replacement for Atenolol twice a day for irregular heart beats I've had for years.  (I wasn't having problems...she just thought this would be less trouble).  My lower legs immediately swelled which I attributed to sitting a lot while caring for that baby grandson.  However, my voice became hoarse and I coughed all the time.  I also had times when food would stick in my throat and make me gag.  Eventually, I found out that I was actually allergic to the Metoprolol (swelling throat) and the exaggerated leg swelling was a side effect of Metoprolol (and sometimes Atenolol...but from that, I only had mild swelling).   

I don't know if the temp I really from the leg or not, but after taking two doses yesterday of the new antibiotic the onc gave me, the swelling came down in both legs for the first time in over a week and a half, so maybe something was going on different there.

As to what antibiotics to use, I have to be very careful to use something not too broadspectrum because after taking one called Cefdinir in Dec of 2012, I developed C-Diff in Feb of 2014.  C-Diff is a very, nasty and extremely difficult bacterial infection of the colon and can cause death.  Don't want to repeat that if at all possible.

The antibiotic he put me on is an Erythromiacin...which can still cause C-Diff, but not as likely.  I've been taking two probiotics a day and his suggestion was to take three. 

Another bump in the road.  Sure wish the road crew would get out and smooth out the bumps and holes a bit.  We're use to potholes in Iowa, especially after the winter, but that doesn't mean we like them.

Oh....a note of interest....as we arrived at the oncologist's office yesterday, the weather radio gave out a warning for the county to the south of us for severe storms.  By the time we went through the pharmacy drive up to see if the script was filled (it was not), there was a warning for our county.  As we parked at an angle to watch the clouds (we're trained weather spotters), the sirens went off...yup....tornado headed toward us.  We watched the sky very carefully and just as the pharmacy called us on the cell phone to tell us the script was ready, the warning was cancelled.  Phew! 

Julie T.

Just for today, I can get through anything.  "Never let fear decide your fate."  (from the band, Awoination.)

Re: Help...two days post port implantation....running temp

Julie,

Glad to hear you are getting some help and things are improving.  Then a tornado warning on top of everything else.  Glad that also turned out OK.  Oh well, just another bump in the road.  smile

Love,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.