Topic: Help - Any suggestions?
Okay, I am so ready to pull my hair out right now. We are now over two weeks past the last radiation and the 5Fu chemo stopped. Mark just keeps slipping down hill and I am not sure what else to do.
I know I am too close to it....it's hard for me to step back and take a clinical view like I would with my patients.
His weight is now down to 175# (he was 215-220# when we started). He only drinks maybe 8-10 ounces of fluid a day and only eats about 1/2 a can of soup, a Carnation Instant Breakfast and maybe some MaltOMeal a day.
Currently he is getting 1 liter of fluid three times a week that I am doing at home rather than driving to Seattle for it. We started Megace last week and started Lexapro (an anti-depressant) two days ago. I stopped all his blood pressure medications last week and even today his blood pressure was 74/56.
I ended up dropping everything at work and running home because when I called to talk to him he was slurring his words and not making sense (I worried about a stroke but he was finally neurologically when I got home). But he sleeps all the time and even when he is awake he really doesn't have a clue what's going on. Yesterday the Infusion company called him to see what he needed for supplies and he didn't remember them calling.
I have been in close contact with the MD office and I will give him extra fluids today to help with the low blood pressure. His lab work is fine...liver, kidneys, all that. In fact white count, red count and platelets are all back to normal after chemo. I have the script for Medical Marijuana but he flat refuses to use it or even consider it. I also started him on Super Digestive Enzymes which is an over the counter supplement that has probiotics and enzymes to help with digestion but that hasn't made any difference.
Any suggestions or thoughts? Maybe someone has a idea that might help.