Topic: Need some help with Neuropathy
Hi everyone, I hope someone can offer some advice for dealing with neuropathy. I've read alot of material but haven't found anything very helpful. I'm a diabetic and have been dealing with it myself for years but my case is no where near as bad as it is for my wife. She did about 8 rounds of Gem/Cis before it stopped working for her but by the time they'd taken her off it she had very serious problems with both feet. (She's also lost most of her hearing) But since being off the Cisplatin the neuropathy only seems to be getting worse. Her feet are totally numb and she has severe balance and weakness issues. To the point where she's no longer able to walk for more than 5 minutes, she has to be in a whellchair to leave the house. A couple of weeks ago she stubbed one of her toes...actually she stumbled and hit it against the corner of the TV and broke her toe and completely ripped the toenail off. She never felt a thing!
After the Gem/Cis she was prescribed Xeloda and Gemzar. She's done three rounds but has decided to take a break, if not abandon that treatment all together. She got severe Foot and Hand syndrone...mostly her hands and now her fingers are so numd that she can't handle buttons on her clothes.
She's seen a Neurologist who confirmed the problem but offered no solutions. Gavapentin hasn't been helpful since her issue is numbness abd loss of balance, not pain.
Has anyone dealt with neuropathy this severe? Are there any alternative treatments, supplements, etc that might help?
i'd appreciate any advice that anyone has to offer. Thanks.