My husband with the CUP diagnosis (90% sure it is bile duct cancer). Has been on folfox and oxilplatin ( 10 rounds). The doctor is suggesting that he go on a maintenance of folfox in the form of a pill. Has anyone ever done/heard of this?
Also, the needle and tubing fell out of his port in the middle of the night (he has a cartridge of chemo that runs during the night every other week). Chemo and blood leaked out - he complained that he felt that he thought it had loosened at 10:30pm. So, it leaked for about 5 hours before it totally came out and I turned the machine off. Ever happen to anyone? The office is saying that because he was re-connected the next day, that is the best they could do?
Comments, please! Thanks, Diana