Topic: The Cholangiocarcinoma Foundation Launches “Show Us Your Card” Educati

The Cholangiocarcinoma Foundation Launches “Show Us Your Card” Education Campaign

In an effort to educate patients and physicians about a potentially fatal complication of cholangiocarcinoma (bile duct cancer), the Cholangiocarcinoma Foundation, in collaboration with a Roswell Park Cancer Institute oncologist, has launched the “Show Us Your Card” campaign, and a new free product for patients – the Biliary Emergency Information Card.

Patients with cholangiocarcinoma are at increased risk for ascending cholangitis, which is a bacterial infection in the biliary system. This complication is more common in patients with bile duct drainage tubes or stents; however, cholangitis can occur in any patient with cholangiocarcinoma, and can be life threatening and should be treated as a medical emergency. Symptoms of cholangitis include: fever, shaking, chills, abdominal pain, jaundice, malaise, general weakness, right upper quadrant tenderness, hypotension or septic shock.

Renuka Iyer, M.D., a medical oncologist at Roswell Park Cancer Institute in Buffalo, N.Y., recognized the need to educate patients with cholangiocarcinoma about this urgent condition and its symptoms, and also to ensure that the patient’s health care professionals had accurate information to diagnose and treat this potentially fatal complication. Dr. Iyer met with Cholangiocarcinoma Foundation board members in February 2014 to collaborate on a solution to this problem. The Biliary Emergency Information Card is the result of this meeting.

Patients can quickly and easily complete a free, online form that populates the Biliary Emergency Information Card with patient information for their specific cholangiocarcinoma treatment and their health care providers’ contact information. The patients can print and fold the card so it is accessible at all times. Instructions on the card also include specific emergency treatment guidelines. Medical personnel can visit curecc.org/biliarycard or scan a QR code for additional instructions on symptoms, signs, labs, workup, treatment and follow-up for the patient.

“I am delighted the Cholangiocarcinoma Foundation has made the Biliary Emergency Information Card a reality,” said Dr. Iyer. “In my practice, I have seen biliary cancer patients suffer from cholangitis and often wondered how to help them take an active role in their care. The Biliary Emergency Information Card does this and more by facilitating physician to physician communication to ensure patients get prompt and definitive medical treatment.”

About The Cholangiocarcinoma Foundation

The Cholangiocarcinoma Foundation (CCF) is a global non-profit organization committed to seeking a cause and cure for cholangiocarcinoma (bile duct cancer) through research, education, collaboration, and advocacy. More information is available at www.cholangiocarcinoma.org.

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: The Cholangiocarcinoma Foundation Launches “Show Us Your Card” Educati

Information for the treating physician -

http://cholangiocarcinoma.org/2013/bili … iary-card/

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: The Cholangiocarcinoma Foundation Launches “Show Us Your Card” Educati

WOW! Thanks Gavin, we are rockin and rollin!!!!!!!!!!!!!!! Soon I hope we will stomp on that rock and roll right over the CC!!!!!!!!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: The Cholangiocarcinoma Foundation Launches “Show Us Your Card” Educati

You got that right Momma!!! Stompin and rockin, I like that!!! smile

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: The Cholangiocarcinoma Foundation Launches “Show Us Your Card” Educati

http://www.prweb.com/releases/2014/05/prweb11899341.htm

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

6 (edited by marions Sun, 01 Jun 2014 20:22:46)

Re: The Cholangiocarcinoma Foundation Launches “Show Us Your Card” Educati

This card is very important for patients and/or caregivers to have on hand.  Please make sure to download.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: The Cholangiocarcinoma Foundation Launches “Show Us Your Card” Educati

So many exciting things happening!!!!
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: The Cholangiocarcinoma Foundation Launches “Show Us Your Card” Educati

So many exciting things happening!!!!
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider