Topic: Dad has cc

My dad was diagnosed with cc in January 2008.  I'm sitting with him in his hospital room and he is slowly coming out of a fight with a bad infection.  His fever was spiked, and chemo left him with nothing to defend himself.  It didn't look good for the past few days.  I've been caring for dad at my home for the past three months; his home that he shares with my mom is not set up for all the necessary equipment that dad needs now in his daily life.  It is fortunate that my home is two blocks away from my parents' home.  The cancer has spread:  it is eating out his right femur, and we are preparing for any break in the bone that is inevitable.  He has multiple tumors in the tailbone area.  He is not a candidate for radiation, because he is not able to bear weight, requires a hoyer lift for relocation, and is not comfortable laying on his back.  Surgery is not an option: his oncologists feels he would never survive the surgery.  Dad is a diabetic, has CHF, and his kidneys are in rapid decline.  I am to understand that the probability of me losing my dad this week is high.  It has been a long, frightening journey...I always knew this was to be the outcome, but I suppose one is never really ready.  I am waiting for the doctor to visit again, and then will continue this post.  I just want to say what everyone else says...thank you for this website...I felt as though I am among family.  I used  everyone's experience, knowledge and encouragement to advocate for my family.  God Bless you. Jolene  aka 'daddysgirl'

"Faith in something greater than ourselves enables us to do what we have said we'll do, to press forward when we are tired or hurt or afraid, to keep going when the challenge seems overwhelming and the course is entirely uncertain."     ~g. b. hinckley

Re: Dad has cc

Jolene..... I'm sorry to hear your Dad is in such a state.  Are you planning on asking for any hospice support at home or does he need to stay in the hospital? I too have basically been told there is not much else for me to do,although I'm not so as advance as your dad. I was hoping for some radiation, but the doctor basically said it would kill my liver. I know what your going through and it is tremendously an emotional time.  That chemo will more than not suck all the infection fighting white cells right out of your body,that's why I insisted on figrastim injections each time to keep things balanced out a little bit.  So I guess Im saying if you decide on anymore chemo has filgrastim been mentioned also maintenance level antibiotic for a few days after chemo with filgrastim.  Maybe with so much bone involvement it's not advisable . Just wanted to share a little information. Be as strong as you can Daddysgirl and be sure to share your thoughts and feelings so that you don't end up ill.

God Bless,
Jeff G.

Take it to the Limit,One More Time! (Eagles)

Re: Dad has cc

Jolene,
there never is much to say after Jeff's comments as he speaks so well expressing the feelings of all of us.  I am wishing for strenght for your Dad, you, and the entire family. 
Hugs
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Dad has cc

Jeff and Marion,  Thank you for your encouraging words.  I am so very sad to share that my strong, handsome father passed away this afternoon.  He just couldn't fight any longer.  I spent last night with dad at the hospital as I have been doing, and I suffered the 'dark night of my soul' where I secondguessed all my decisions, bargained with God, wondered if I had failed him...my cousin (a hospice volunteer) stayed with me and consoled me and counseled me...I fell asleep the most exhausted that I've been since I started taking care of dad 4 years ago on other medical issues.  This morning I sat with my dad and held his hand.  We prayed together  (he was unconsious but I believe he heard everything), I freshened him up.  "and with the dawn, rejoicing".  I was happy that Dad had slept through the night for the first time in a couple of years.  He was peaceful.  I asked that he be given morphine every hour  and I believe he was painfree.  I stayed with him until my younger brother and mom came to be with him.   I told dad that I was going home for an hour and would be back.  And I encouraged him to rest.  He died 30 minutes after I left.  I can only see the gift in this:  for the past few years I had worked hard on keeping dad alive and healthy,  he spared me having to watch him pass away.

"Faith in something greater than ourselves enables us to do what we have said we'll do, to press forward when we are tired or hurt or afraid, to keep going when the challenge seems overwhelming and the course is entirely uncertain."     ~g. b. hinckley

Re: Dad has cc

Jolene

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Dad has cc

Jolene,  May your Daddy rest in peace.  I know one thing for sure; He departed this world one happy and proud man.  The love and support you gave Jolene, was that of a caring , loving ,and respectful daughter straight from the heart.  You did all humanly possible and certainly should have no second guessing or regrets whatsoever!  Cherish the the wonderful memories. A big hug to you young lady!
God's Blessings and strength for You and your Family.
Jeff G.

Take it to the Limit,One More Time! (Eagles)

Re: Dad has cc

Jolene,  I cry for you.  I am so sorry for the loss of your father.  You are a good and loving daughter and did everything you could do for him.  Have peace with that if nothing else. I will pray for you and your family.  YOU WILL ALWAYS BE DADDYSGIRL!

With all my love,
Christina

Re: Dad has cc

Jolene,
How very sorry I am to hear of your Dad's passing.  You seem a very kind, loving and responsible daughter.  A dad could not have asked for more.  Prayers for you and your family.
Karen

Wishing all God's blessings!

Re: Dad has cc

To Jolene: We are very sorry to hear of your daddy's passing. You did everything possible to aid and console your father into an easier journey. You are the kind of daughter we all hope to have and one of his biggest blessings he found in you. Remember, your daddy has only left the room he will always be in your heart! You and your family are in our prayers.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Dad has cc

Jolene, I'm so sorry you've lost your wonderful father.  I pray that God will put his loving arms around you and comfort you and your family.

Carol

11 (edited by Sophie Tue, 29 Jul 2008 12:09:48)

Re: Dad has cc

The thoughts when one loses a beloved parent are so frightening, Jolene.  I pray God  gives you courage to get through this, and peace and ease of suffering for your family.  Right now so many are grieving with you as well as praying for you and your family.

Sophie