Topic: My introduction

Hello all, my name is Carolyn and I'm 56 years old, a seven year breast cancer survivor and I was diagnosed August 2013 with gallbladder CA, unresectable, a few liver mets, Stage 4.  Prior to diagnosis, I had  what I thought were minor, common GI symptoms like GERD, heartburn.  Early May, 2013 I had what seemed like a classic gallbladder attack, (a first) and an ER work up was unremarkable.  Followed up with my internist, started over-the-counter meds as needed.  Had a colonoscopy which was fine in early June.  By late June I was feeling worse, had upper abdominal pain, poor appetite and fullness after meals.  My internist did more bloodwork, found H. pilori and I took two weeks of antibiotics which made me feel worse.  Still feeling bad, I saw her again and she ordered Ultrasound which told us what was going on with my gallbladder.  My breast oncologist, affiliated with Sloan Kettering helped us find the group at Sloan and Dr. Abou-Alfa is now my doctor.  I started chemo (Gemcitabine and Cisplatin) on September 9, 2013, along with starting a clinical trial of MEK 162.  Six months into treatment, I'm doing well.  The tumor has shrunk, mets have also shrunk and in general I feel well.  My husband has been a wonderful support, as has our only son who is in college.  I am so fortunate to have wonderful friends through community involvement and church and I'm getting through the challenges with my faith, family and friends lifting me up as I go.  I am finding now that my emotions are more up and down, as the routine continues and I tire more easily.  I was very happy to learn about this group because I am ready to get to know others who are in a similar situation.  Thanks for listening to my story, and for sharing yours with me.  I'm new to discussion boards, have never posted on one, but here I go!

Carolyn

Re: My introduction

Carolyn...welcome to our site and congratulations on taking the plunge.  You now have joined the world of bloggers. I assume that you are participating in this clinical trial:
http://clinicaltrials.gov/show/NCT01885195
and that you are responding well.  That is fantastic news.

Carolyn, although biliary cancers include that of gall bladder, this site has little or no knowledge of gall bladder cancer. Excellent information for you cancer though is well documented in the book written by no other than "your" physician and his wife.  It is free for download: 
http://cholangiocarcinoma.org/bookorder-ebook.htm

Again, welcome. I wish for continued success heading your way.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: My introduction

Hi Marion
I tried to find the book - the link took me to an error message .  I also tried the "search" feature which also brought up the same link, which then unfortunately also resulted in an error, not found message.
Is there another way I can download it?
Thanks
Sandy

Re: My introduction

With the website update, it looks like the book is now at a new link.

This one should work:

http://cholangiocarcinoma.org/news/foun … ring-form/

Let me know if you have any other problems.

Jason