Topic: Social Security has an obligation to provide benefits quickly

http://www.socialsecurity.gov/compassionateallowances/

According to the list it appears that intrahepatic is included however; I don't see anything on extrahepatic or bile duct.

Has anyone received accelerated approval for extrahepatic cholangiocarcinoma?

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Social Security has an obligation to provide benefits quickly

We didn't need it as CIGNA came through like a breeze however, we did find out that if the Insurance Company said no to a PET Scan the ONC intervened and the no became a yes. So not be afraid to ask your Doctors to intervene.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Social Security has an obligation to provide benefits quickly

My last PET scan was delayed and then denied by insurance. My oncologist made the call and intervened and it was approved. My insurance states that there is a lifetime maximum of three PET scans after initial diagnosis and I have had three. I advised my doctor that I never want insurance limitations to dictate my health care and he agreed.
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Social Security has an obligation to provide benefits quickly

marions wrote:

http://www.socialsecurity.gov/compassionateallowances/

According to the list it appears that intrahepatic is included however; I don't see anything on extrahepatic or bile duct.

Has anyone received accelerated approval for extrahepatic cholangiocarcinoma?

I am extrahepatic and received SSDI right away. I applied in Jan. 2014 and heard back from them in Feb saying they approved and my first check was deposited by the end of Mar. A few questions over the phone and I did not have to see their Doc in order to qualify. That was it.
jgo

A thousand words will not leave so deep of an impression as one deed.

Re: Social Security has an obligation to provide benefits quickly

jgo....thank you so very much for chiming in and sharing this important information with us. So good to know that all our patients including those with extrahepatic disease are eligible to received SSDI.  What would we ever do without the incredible input from our members?  Thanks again, dear jgo and a warm welcome to our site.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Social Security has an obligation to provide benefits quickly

When I applied for social security, I also applied for disability based on my ICC diagnosis, surgery and chemo treatment.   The claim was expedited, but I was rejected for disability with no explanation other than I could appeal.  Since my husband has now decided to retire, in two months, I will be bumped up to the spousal rate, which is actually about $10 more than disability.  Still, it was somewhat of a shock.  I haven't been able to work since January due to all the testing, surgery, recovery, blood clots and now chemo, and a diagnosis of ICC,, but that wasn't enough.  I'm "guessing" that since I had surgery, it puts me into the category of being "cured" until maybe the cancer returns and staging changes.  Of course, I"m hoping that doesn't happen....and with the dollar amount for me being similar...now with my husband's retirement on SS effective in August, it seems to be a no-brainer, but for someone who isn't of retirement age as I am, it could be a real issue.  The only thing I will miss out on....by just doing the social security will be being able to be on Medicare at age 64.  However, since we have a good retiree's insurance plan....which is basically the same plan we're on now, I think we'd rather stick with what we have anyway as we have great leeway in where we go for medical care  with this plan.  But again....for someone now in our position, the denial of disability benefits for ICC for someone with my profile, this may become a big financial problem.  I would appeal, and fight for the disability designation, just to get it done for others to come, but right now, it's all I can do keeping my head above water with the chemo and family obligations.  Maybe I will give an appeal a try in July.....before the 60 day deadline...once I get past all the family stuff going on in June.

"Just for today, I can get through anything."  Hey....I'm a cancer survivor, not a doctor.  The opinions I state are my own, based on my personal experiences or knowledge.  As always, talk to your doctor about your concerns and treatment.