Topic: Great checkup at MD Anderson

Since radiation in November, I have not been on any treatment because my CA 19-9 had dropped to 12.  Well, after bloodwork, it shows my CA 19-9 has again dropped to 9.2!!!  My tumor is slightly turning the same color as my liver......it is so stable that we were sent home with no orders for another 3 months!!  Dr. Milind Javle says I am as stable as can be......its not usual to be as stable as I am...and the fact that my cancer marker is still moving in the downward direction. My liver and kidneys are in great shape....and the liver is regenerating from the radiation.
I asked Dr. Javle about Immunotherapy and since my tumor was so stable wouldn't it be a great time to attack it?  He said he agreed it made sense but that is not how it would work. First off, Immunotherapy is still in clinical trials but has been approved for melanomas and lung cancer tumors. GET THIS:  He stated he believes and hopes that Immunotherapy will be approved to start using in about a year if it is approved for CC. He truly believes it will work on CC and that it will be approved.   I asked that if it was approved....could I immediately start getting it....he stated NO...you would THINK it would be like the Measles shot (you get the shot BEFORE you get the measles) but with Immunotherapy---you have to have an active tumor/tumors to start the process of Immunotherapy. I left feeling so hopeful and that it is just a matter of time (which we all know is sometimes NOT on our side) before we can squish  cancer (even for our rare CC)!!  Feeling blessed to hear all of this first hand from one of the top drs in the US. at MD Anderson for cholangiocarcinoma!!!!

Re: Great checkup at MD Anderson

Hello Patty,

I think i will be faster than Lainy this time in saying YIPPPiii, great news.
By the way, you have been slacking lately on  updating your blog... I am a big FAN

Emad

"For as it goes through fire, passioned with a rebirth desire; it burns to ashes, and a new life dashes; for the Phoenix shall rise"  As I am the Phoenix and i will hold your hands  ...
I will always make you proud
My Angels "SEEK"

Re: Great checkup at MD Anderson

Oh Patty, stupendous (ha, fooled you Emad) ! I am so very happy for you, Patty. Enjoy your summer as your snow comes soon enough. You are truly a poster girl for CC and how to kick it to the curb! Your post is again one of HOPE and Miracles. Please let us hear from you over the summer or I shall have to send you 100 lashes with a wet noodle like I do to Tom (of Tom and Ben).

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Great checkup at MD Anderson

Patty,

I am so happy for  you.  This is great news.   Hoping to hear more of this in 3 months.  Keep in touch and let us know how things are going.  Have a wonderful summer.

Hugs,
Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Great checkup at MD Anderson

Patty,

I've been trying to find the time to actually call you...though right now, I am hoping I wrote it down on a card instead of having to go through all the posts on the discussion board.  I know yoiu left it for me one time while I was having the blood clots issue. 

Well, this is just smashing good news....I am so thrilled for YOUR test results, which sound over the top good in every way.  Then to add icing to the cake.....Dr. Javie's remarks about immunitherapy for CC is just fantastic.  We're all waiting.  Even though right now, it isn't something for me since I don't have any "known" tumors right now, you never know with this cancer....and for all my family of friends here on this forum who might benefit from this new therapy......I'm praying that it becomes a reality sooner than later.  There are several other therapies out there that are getting ready to move into human trials....and one has great promise for a lot of "solid" type cancers like ours.  Hope is on the horizon.....CURE is on the horizon. 

For today....Patty.....big, big hugs for you......you have to be over the moon happy.

Julie T.

"Just for today, I can get through anything."  Hey....I'm a cancer survivor, not a doctor.  The opinions I state are my own, based on my personal experiences or knowledge.  As always, talk to your doctor about your concerns and treatment.

Re: Great checkup at MD Anderson

Hi Patty,

This is brilliant news indeed, thanks so much for sharing that! Majorly chuffed for you I am and of course, hoping that the good news continues to roll for you! Love hearing what Dr Javle said to you as well!! Please let us know how things go, and avoid the 100 lashes from Lainy at the same time!!

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Great checkup at MD Anderson

Patty,
Such great, wonderful, unbelievably exciting news!! I am so happy for you!! And exciting news for the rest of us from MD Anderson!

KrisJ
"Don't just have minutes in the day; have moments in time."
Any opinions I give are based on personal experiences, and are not based on medical knowledge. I strongly suggest receiving medical care and opinions.

Re: Great checkup at MD Anderson

Patty
Love this fabulous news...but you are a ten in my book!

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Great checkup at MD Anderson

That is wonderful new s !!!!!

Re: Great checkup at MD Anderson

Patty,
Time to come visit me again so we can celebrate!!!!
Hugs
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider