Topic: Finally some hopeful news!

Went to my GI today to check in about the Ulcerative Colitis. The good news is that after 3 years of this krap we found out through tests that each Med I tried worked to a point and stopped because I was not absorbing it in my system. After special Lab work we also  find out  that I have NOTHING in my system to prevent the help it just was not enough. So getting an infusion 4 weeks after the last and increasing it to 6 vials instead of 4 and then will go back to every 8 weeks. I also need the Imuran and down to 5mg of Prednisone as they seem to give the Remicade an extra push. As of now he will wean me down soon to be off the Pred but I may be on Imuran for years. I don't care if it gives me a normal life again! First real hope there is an end to this and I don't care much whose end we are talking about!
Funny story. I told him that on OUR Cholangio web site we have one of our biggest go to ONCs at MDA Houston and he is now on our Medical Supervisory Board and he is my GI's twin, swear to God. His Name is Dr. Javle and I told Dr. Mahajani to look him up. I was checking out and all of a sudden I heard a laugh from him that cracked me up and he yelled out, I'm gonna have to talk to my mother. How uncanny how he looks just like me!!! If you are curious you can look up Rohit Mahajani and Javle and see for yourself. He was just blown away!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Finally some hopeful news!

That's good, Lainey.  Best wishes with your new regimen... you deserve a "normal" life!  I bet you can't wait to get off the Pred.
Willow

Willow

Re: Finally some hopeful news!

First...Lainy....wonderful news that maybe they have this figured out for you.  Now....to "git 'er done."  ....and get on with life again. 

Second....I apparently clicked on "report this post"....fingers moved over the box I think.....and then panicked and closed the box that came up for a written reason for clicking the box.  ARGH!!!  Anyway...I have no idea how to take it back.....so just know that I screwed up. 

Sigh.

"Just for today, I can get through anything."  Hey....I'm a cancer survivor, not a doctor.  The opinions I state are my own, based on my personal experiences or knowledge.  As always, talk to your doctor about your concerns and treatment.

Re: Finally some hopeful news!

Lainy,  Glad to hear all this good news.   Hope it all works out for you and your are back to "normal" soon.  Hugs, Darla

"One Day At A Time"

All of my comments and suggestions are just my opinions and are not a substitute for professional medical advice.   You should always seek the advice of your physician or other qualified health care providers.

Re: Finally some hopeful news!

Wonderful news Lainy. Hopefully things will go get and no more "surprises" to come. That is so good to hear.

KrisV

Any advice given is based on my experiences and should not be substituted for any medical recommendations. Please speak with your provider before making any changes.

Re: Finally some hopeful news!

Thanks girls, I know it will take some time, didn't get that bad overnight but at least I see the light at the end of the ------------- fill in your own word!  LOL

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Finally some hopeful news!

Morning Lainy.

Great news about your health update and hope that the new program works well! So hoping that you get your normal life back, you so deserve that after all of this time! Hoping too that you can get off of the grrrrrr preds!!! Light at the end of the ----------- indeed!! smile

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Finally some hopeful news!

TO My Son from another Mum, I meant to answer you yesterday as you really cracked me up on the cleaning bit. You know me tooooo well! Give Mum a hug for me.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Finally some hopeful news!

I will do Momma!! Got some cleaning to do here but can't get motivated for it! Taking mum to the dentist today to see about dentures for her, she is less than keen on this as you could imagine! Major GRRRRRR to dentists!!!

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Finally some hopeful news!

Lainy
Love to read good news.....normal is wonderful! Hope you can be done wth steroids soon, they made me fluffy, anxious and hungry.
Love
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Finally some hopeful news!

Hi Lisa, this time on Prednisone I have only gained 8 LBS last time I gained 30. Now the big problem at my age is on the Pred my face gets fuller and there are no wrinkles and while I was off and went down to my normal 128LBS, all the wrinkles showed. BUT can't have everything, so I guess I will accept the wrinkles when they return. I earned them.

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Finally some hopeful news!

Hi my lovely,

Good to hear all is well. I hope you start regaining your old self once again.

Ilias

Re: Finally some hopeful news!

Lainy,

I echo what's already been said. Great news. I am very happy for you. Please relax a bit and enjoy this special time. As you well know, you need to cherish the times that great news comes your way.

Take care,
Carl

Re: Finally some hopeful news!

Lainy
You are beautiful, I don't see any wrinkles!!!
Love
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider