Topic: Finally some hopeful news!
Went to my GI today to check in about the Ulcerative Colitis. The good news is that after 3 years of this krap we found out through tests that each Med I tried worked to a point and stopped because I was not absorbing it in my system. After special Lab work we also find out that I have NOTHING in my system to prevent the help it just was not enough. So getting an infusion 4 weeks after the last and increasing it to 6 vials instead of 4 and then will go back to every 8 weeks. I also need the Imuran and down to 5mg of Prednisone as they seem to give the Remicade an extra push. As of now he will wean me down soon to be off the Pred but I may be on Imuran for years. I don't care if it gives me a normal life again! First real hope there is an end to this and I don't care much whose end we are talking about!
Funny story. I told him that on OUR Cholangio web site we have one of our biggest go to ONCs at MDA Houston and he is now on our Medical Supervisory Board and he is my GI's twin, swear to God. His Name is Dr. Javle and I told Dr. Mahajani to look him up. I was checking out and all of a sudden I heard a laugh from him that cracked me up and he yelled out, I'm gonna have to talk to my mother. How uncanny how he looks just like me!!! If you are curious you can look up Rohit Mahajani and Javle and see for yourself. He was just blown away!
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.