Topic: Register for the CURE

The International Cholangiocarcinoma Patient Registry (ICPR) will open this Friday, June 27 at noon (Eastern).  The ICPR will advance Collaboration, Understanding, Research and Education for this rare disease.  If 100 people register in the first 60 hours, CCF will receive a $500 donation.

Get ready now to Register for the C.U.R.E.!

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Register for the CURE

This is soooo exciting!
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Register for the CURE

Lisa...indeed it is exciting.  We had approached this subject many years ago, but started compiling information about 2 years ago and now.....we are ready to go.  In the background, our curators, are very busy with the responses already received. We are overjoyed to witness a substantial, international responses as well as that of the US patient/caregiver/ family member.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Register for the CURE

Very exciting times!

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.