Topic: Registry Database Searching Capability

There is a potential wealth of info in the Registry, but analyzing it could use help.  But, since it is a database, that should not be insurmountable.  We need a way to put the data into subsets.

Example 1:
Cut the database into a subset which consists only of those people who have had resections or transplants.  Then it would be possible to get an idea of what factors into that option, e.g., age, stage, etc.

Example 2:
Develop a subset of only those who were diagnosed at Stage IV.  You could see which treatment options were most frequently used.

These are only two quick examples.  Once the process is developed, you could easily check for common factors.  Diabetics with Crohn's disease who had a near-relative with melanoma (just stringing things together but you get the idea).

Duke

Fighting with dignity, not desperation.

Live, Laugh, Love

Re: Registry Database Searching Capability

Duke....thanks a million. This is excellent feedback.  It is very important to receive input from the registrants.  In order to serve the patient community, we want to improve on what needs to be improved upon.  With the input of everyone, we will get there.
Thanks again,
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Registry Database Searching Capability

Under Treatment History, can you specify repeat treatments?  I've read of patients who have had (for example) multiple resections.  Other treatments could have been repeated while interleaving with different treatments.

Duke

Fighting with dignity, not desperation.

Live, Laugh, Love

Re: Registry Database Searching Capability

In section where order of treatment is asked, survey Only let's you list chemo once when ordering treatments. My sister had chemo 4 times with couple other treatments in between, for example, but there is not a way to list different chemos as first, third. fourth and sixth treatment.

Willow

Re: Registry Database Searching Capability

Wlillow,
I emailed  that question and also the chemo choices were not complete.
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider