Coming up on my first anniversary of diagnosis so I looked back now that I have an idea what this is all about (as much as anyone).
What prompted my question was that in October 2012 my alk phos was 348 and increased to 449 a month later. It was about 70 the year before. It increased to 856 by the time I was diagnosed in July 2013. I know it is not proof of cc, but it should have prompted my PCP to do something other than order two retests that confirmed it was high. This is something that impacts both the Registry and the Mayo study since they want the diagnosis date. Which begs the question about what my treatment options could have been. But that train has left the station. I've come to grips with that.
More importantly, it highlights the importance of following up when things don't look right rather than thinking "doctor knows best." That's the message everyone who reads this post needs to take to their friends and family. Doctors are human. Second opinions and all that. Plus numerous posts about clueless doctors.
This has been pretty much a downer, so to attempt to lighten this up:
If it doesn't look like a duck, walk like a duck, or quack like a duck, maybe you should buy your ducks somewhere else.
Fighting with dignity, not desperation.
Live, Laugh, Love