Topic: Mayo Clinic Scan Results

It's been 6 months since my 5 cm intrahepatic tumor was found in late January 2014 and 5 months since surgery to remove the left liver lobe along with the 5 cm tumor and one small one next to it. 

Today, August 1, I had an MRI (problems with the CT that was planned)  which came back totally negative....no sign of any new growths anywhere or anything remotely suspicious. 

I come back here again in 3 months for another scan.

More in the next couple days regarding round 6 of my chemo.  Right now, I"m exhausted after a full day at the clinic and then in the ER at a local hospital tonight for an abscessed toenail infection.  GAH!!!!

God is good....life is good.

Just for today, I can get through anything.  "Never let fear decide your fate."  (from the band, Awoination.)

Re: Mayo Clinic Scan Results

YIPPEE! Julie, I just knew it was going to be fine. An ingrown toenail???? Of all the crazy things. Keep up the good work, girl and your Chemo is almost done. Yea!!!

Teddy ~In our hearts forever~ATTITUDE is EVERYTHING
Any suggestion I offer is intended as friendly advice based solely on my own experience. Please consult your doctor for professional guidance.

Re: Mayo Clinic Scan Results

Indeed, life is good, dear Julie.  Congratulations on the best results possible and for your last round of chemo to be the icing on the cake.  Yikes, on the toenail infection, but that too will pass.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Mayo Clinic Scan Results

Brilliant news Julie! Thanks for sharing with us. Fingers crossed for the same results in 3 months time! And boo to the toenail infection, actually boo to any infections! Life is good indeed!

Hugs,

Gavin

Any advice or comments I give are based on personal experiences and knowledge and are my opinions only, they are not to be substituted for professional medical advice. Please seek professional advice from a qualified doctor or medical professional.

Re: Mayo Clinic Scan Results

Julie.
I love reading this fabulous news...congrats...do the happy dance!
Lisa

This Information Is Not Intended Nor Implied To Be A Substitute For Professional Medical Advice. You Should Always Seek The Advice Of Your Physician Or Other Qualified Health Care Provider

Re: Mayo Clinic Scan Results

Round 6 of the Gem/Cis chemo is on hold for now per my Mayo doctor.  He was fine with all of my blood counts, except those associated with my kidneys.  Both were trending higher, out of normal range.  He wants them to be back into the normal range before I would get any more chemo.....in his words, "There's no point in frying the kidneys."   

So, I go back to the local oncologist on August 13th to get labs drawn to see if I'm okay to do round 6 or not.  If the Bun and Creatinine levels are not where they should be, then we will wait a week (can't remember if he said week or even two if needed) to get kidney numbers back to normal before checking blood levels again.  If they don't settle back into normal, then round 6 isn't probably going to happen. 

Meanwhile, Yes, I've been pushing fluids.

The MRI also showed a small hiatal hernia which explains some of the digestive feelings I've had.  Must eat and drink smaller amounts at a time.

As for round 5, which started July 23rd with the Gem/Cis infusion, I'm still dry heaving from that .  I'm looking forward to next week....when hopefully, that will settle down and I'll have some good days again.

  I now must find a podiatrist to work on my big toenail that ingrew and became badly infected (my big toe was the color of and looked like a ripe, red plum.).  I have a bandage on it and a walking shoe/boot from the ER, which helps.  The nurse practitioner put me on an antibiotic and we're waiting for the results of the culture to make sure the antibiotic will kill the bug in there.   We went to the Olmstead Hospital ER ....most all of their doctors and nurses are Mayo educated....and the wait time was almost nothing.  We had been told that the ER wait time at St. Mary's Hospital (part of Mayo) was 5-6 hours.  We got fantastic treatment at Olmstead and I gave my CC wristband to my nurse practitioner.  He asked some questions....and was super nice.

Just for today, I can get through anything.  "Never let fear decide your fate."  (from the band, Awoination.)

Re: Mayo Clinic Scan Results

Great news about the scan!  Congrats to you and great to hear.

-Randi-

Survivor of cholangiocarcinoma (2009), thyroid cancer (1999), and breast cancer (1994).

My comments, suggestions, and opinions are based only on my personal experience as a cancer survivor. Please consult a physician for professional guidance.

Re: Mayo Clinic Scan Results

Such good news Julie (except that toe!). Keep
Up the good work. Hopefully the kidneys will behave too.
Best wishes,
Kathy

Re: Mayo Clinic Scan Results

Congratulations Julie on the great results! I hope your chemo break will give your kidneys a chance to recoup....definitely no fried kidneys allowed! Good luck with the toenail...those are ouchy little buggers!!
Melinda

Re: Mayo Clinic Scan Results

Julie.....Kidney toxicity and Cisplatin  is well documents.  From what I have learned is that the effects on kidney function are dose related, occur 10-20 days after therapy, and are generally reversible.  I feel hopeful that you, as many others, will recover quickly.
Regarding your ingrown toenail:  My son sent me a picture of his toe and it matches your description.  Outch......wishing for a quick resolve to this more than uncomfortable problem.
Hugs,
Marion

THIS INFORMATION IS NOT INTENDED NOR IMPLIED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE. YOU SHOULD ALWAYS SEEK THE ADVICE OF YOUR PHYSICIAN OR OTHER QUALIFIED HEALTH CARE PROVIDER

Re: Mayo Clinic Scan Results

Congrats Julie! May there be many many more...!  -Matt

Iowagirl wrote:

It's been 6 months since my 5 cm intrahepatic tumor was found in late January 2014 and 5 months since surgery to remove the left liver lobe along with the 5 cm tumor and one small one next to it. 

Today, August 1, I had an MRI (problems with the CT that was planned)  which came back totally negative....no sign of any new growths anywhere or anything remotely suspicious. 

I come back here again in 3 months for another scan.

More in the next couple days regarding round 6 of my chemo.  Right now, I"m exhausted after a full day at the clinic and then in the ER at a local hospital tonight for an abscessed toenail infection.  GAH!!!!

God is good....life is good.